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dosage of abx for late lyme.

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Posted 2/3/2011 3:48 PM (GMT -8)
darn I just wrote this but lost it somehow

I started lyme treatment in 1996 with lyme literate doc, quit about 4 years ago..    Can not ignore anymore very sick.  Limited as I have no ins and

so iv's are out of the question.

good news I found some abx used for late lyme with pretty good results but do not know dosage and I know my PA won't have a clue.

The combo abx are probenicid/amox or probenicid/doxy.  Anybody familiar with this combo and have any idea of dosage info?

I also read tetracycline 500 mg t.i.d. has significantly helped late lymers if used for a long enough time,  Anybody hear of that?

Any thoughts  appreciated   lisa 

Posted 2/3/2011 4:36 PM (GMT -8)
I would love to know if there is an antibiotic that late lyme people can just take every day for rest of their life.

I heard there are some that do but don't know which abx it is.

Instead of trying to blast it out . just get enough to keep it from taking over.

someone was seeing and infectious diseasd doctor who had patients long term lyme that would not give up their antibiotics. i forgot who though
Posted 2/3/2011 5:22 PM (GMT -8)
I have been off abx for 4 years

I am going to attempt to go back on abx until i can go 4 weeks symptom free. It worked when i was under care of lyme dr although it took and could take quite awhile to get back to where I have good days.

gotta do somethin,

I am confident I have nothing to lose : )
Posted 2/18/2011 12:40 AM (GMT -8)
Hi, I'm a little late responding to this thread as I haven't been on in months. I have late lyme and I have only ever taken oral abx. I have been on them for two years now and have been doing pretty darn good. I take Zithromax 500mg 1x a day and also Flagyl 250mg 3x a day. If I try to go off of them I have symptoms return (neuro symptoms, fatigue, heart palp, etc). On the meds I am pretty much back to normal but I do still have some fatigue which I don't think will ever go away. But I'm used to the fatigue and compared to how debilitated I was, I can definitely deal with the fatigue...anything is better than those neuro problems.
Posted 2/18/2011 4:42 AM (GMT -8)
I was treated for late lyme with Biaxin/plaq. Amoxicillin really isn't a good drug for lyme. It's on the weaker side.

My Dr. prefers Tetrycycline for late stage lyme. I couldn't tolerate it very well so I switched to Biaxin and was on it for 2 years before I felt well and stayed on it another 6 months until I felt completely well.

Posted 2/18/2011 11:13 PM (GMT -8)
I attended a couple of meetings at a Lyme support group in New Westminster, BC, where I heard that some folks responded well to either oral tetracycline or oral minocycline (Minocin). One individual, who lives close to me, significantly improved with six months of oral tetracycline. He cannot work in the same demanding, physically and mentally, occupation as before, but he is able to work part-time now. He has been maintaining his current level of functionality for almost two years.

A few others at the meeting said that their health has improved a lot with the Marshall Protocol, managed by a doctor in New Westminster who has opted out of BC's (Canada) health care system (therefore, you pay). He used the MP for other chronic illnesses like RA, fibromyalgia, Gulf War Syndrome, and a few others.

Hopefully there will be a long-term cure in our life times.
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