Welcome to our little spot!! I'm really sorry that you have a need to be here, but you've come to a great place to learn and to share about
Lyme and the other co-infections!!
If you haven't already, it would be beneficial for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!"
, as it is packed full of relevant information, symptom lists and informative links that have been put together by our members here! Most of those who have read through it have said that it was very helpful!!
We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about
our infections and the different ways to treat them!
I wanted to let you know also that MysteryLyme hasn't been on here in a couple of months, so they may not answer you.
I'm really sorry that you were led to believe that a short course of abx would cure your infection(s). The knowledgeable LLMD's (Lyme Literate Medical Doctors - not Infectious Disease docs), recommend a minimum treatment time of 6 - 8 weeks without any rash or other symptoms.
Actually the brain fog is quite common with Lyme and is very well documented as being part of the symptoms of a Lyme Disease infection. It's due to the die off of the bacteria that causes Lyme disease - when it dies off it produces ammonia that goes to the brain - which causes the brain fog. There's lots of reading that can be done on this subject if you are up to it.
Unfortunately, there is no "standard" treatment for Lyme disease. It always depends on the weak points in a person's body, and we each have different weak points. Although generally Lyme treatments start off with 400 - 600 mgs of Doxycycline a day, and since you've been treated a couple of times with no sustainable healing, chances are that you are now dealing with Chronic Lyme, so no one will be able to tell you how long you will require treatment. Once the bacteria has had the chance to spread through out the body, it gets harder and harder to get rid of.
The Lyme bacteria (spirochetes) have 3 forms that they can change into at will
- the spirochetes, the cyst form and the cell-wall-deficient form, and each form must be treated with different abx. www.lymebook.com/top10forms
. Co-infections, present in most cases, can further complicate the healing from Lyme disease.
One of the best things you can do is to detox as per the instructions found in the second post (about
1/2 way through that post) about
detoxing using dry skin brushing, epsom salt/peroxide soaks, and drinking plenty of water - preferably lemon water as it helps to keep the body alkaline. Bacteria and viruses like a body to be more acidic for their survival. Another things that's really good to help a person with these infections to detox well is a FIR sauna.
Once again, Welcome to our spot on the web!! We look forward to getting to know you through your posts!!
Co-Moderator, Lyme Disease ;)
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.