I haven't posted in a while, but have continued reading most of the posts over the last several months. I too will TRY to keep my story short...
I woke one morning to severe tendonitis in my elbow - out of the blue, no injury or known cause. Had no idea it was tendonitis, but assumed it was a pinched nerve. Exactly one month later, after no relief from the tendonitis, I developed similar migrating pain in ALL of my joints. The very next day, I had cold-like symptoms, including a sore throat. Within a day or two, severe dizziness started. Then the myriad of odd symptoms just kept increasing and none were dropping off! I went to the doctor the day after the migratory joint pain started and had many blood tests done, which sent me to a rheumatologist (thinking it was the start of Lupus). I had my first negative Lyme test done about
3 weeks after the migratory joint pain started. I saw ten various specialists/doctors over 4 years and had multiple negative Lyme tests. Finally, out of desperation, I went to an alternative doctor (not an LLMD) thinking this had to be hormonal (regular doctors won't test for that either, no matter how many different ways you ask about
it). She immediately said my symptoms sound like Lyme Disease and wanted me to take the Igenex Lyme test. I was annoyed and didn't want to because I was "guaranteed" that I did not have Lyme Disease by more than one doctor already. I conceded and paid the $260 cash (not covered by my insurance) and was told my test results were positive. I was shocked, but not as shocked as I was when I got a copy of my results and they clearly said "negative." I called the office wondering what the heck was going on, and that's when I was initiated into this bizarre world of borderline tests results and symptoms resulting in a clinical diagnosis of Lyme Disease.
I was put on two strong antibiotics and fluconazole (to combat yeast), plus several supplements for the Lyme Disease and also for adrenal support, which other tests revealed I needed. I was on the antibiotics for 9 months and then went off because my doctor left her practice. At that point I tried teasel root and grapefruit seed extract for several months. I had tried teasel root the first time while on antibiotics for several months. I was also taking milk thistle for liver support this entire time and I detox daily.
I noticed an immediate improvement in energy, which I attributed more to the adrenal support than the Lyme treatment. Over time, my short-term memory improved to what I consider pretty normal for a person my age (mid-forties), and my joint pain improved considerably, but was far from gone and I was still taking Tramadol for pain. Most symptoms improved, but many were still present to some degree. At some point I also started taking 1-2 tablespoons of apple cidar vinegar a day (you can research the reasons for this).
I had gotten Dr. Jernigan's book (Beating Lyme Disease 2nd Ed.) probably a year ago and contemplated trying his at-home protocol, but just wasn't ready to try that yet. I had certainly taken into consideration Deejavu and others' information regarding Dr. Jernigan's protocol, and always had it in the back of my mind that if things don't improve I'll either find another (or a true) LLMD (none in my immediate area) or I'll try this at-home protocol. about
two months ago, I decided it was time to try the at-home protocol. I have been pleasantly surprised. It is not cheap (about
$650 for the book and 8 month supply of products), but the LLMD I found was $350 for just one appointment (not covered by insurance), and not including any tests or treatment, plus the travel expenses, so really this is a bargain. I decided it was worth a shot for me to try Dr. Jernigan's protocol and am glad I decided to go this route at this point. After two months, my pain has reduced to the point I am no longer taking the Tramadol. At times the pain will momentarily be bad enough to consider taking it, but it passes. My numbness is mostly not noticible unless I really start thinking about
it or sometimes it is very noticible, but passes fairly quickly. So I'd say, yes, I believe Dr. Jernigan's products are making a dfference for me. I don't know if I'd be doing as well if I hadn't done the antibiotics and other supplements first though. Right now, I'm taking the Borrelogen and Antitox, and very soon I'll switch to the Lymogen and continue with the Antitox for two months, and then switch to the Microbojen and Antitox for two months, and then I plan to do the follow-up combination for another two months. (It's all explained in the book what to take, how much, and for how long and what else you need to do to make this work for you).
So, right now, going on six years after this mess started and getting close to two years after being diagnosed and starting treatment, I'm feeling very good and feel like I'm getting better, but it has been a long road and I have no false hope that I'll be "cured" for good. It is entirely possible that I was infected many years ago because of weird symptoms that have come and gone over the years, but my body was just unable to fight it off any longer at the point all h--- broke loose for me.
Good luck to all of you!!
Post Edited (Tala3) : 5/1/2011 11:53:03 AM (GMT-6)