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LymeSince9
Regular Member


Date Joined May 2011
Total Posts : 38
   Posted 5/29/2011 4:01 PM (GMT -6)   
 
Anyone tested positive for Mycoplasma?
 
I definitely have Bartonella...because my herxes so far show it
as well as neuroborrelliosis only confirmed by an unidentified object on my Brain MRI.
 
Was finally diagnosed this March by a LLMD after seeing over 25 doctors in a decade
after being told by a kinesiologist that I had it a year prior.
Survived on Acupuncture, diet and supplements in between those times of acute illness (though barely).
 
Would love the opportunity to talk to others like me out there.
Most of us are stuck in our homes...
and we really do need to talk to each other.
Support meetings are usually vacant because everyone is home sick I've heard from a few.
So if you'd like to chat
and are newer at this than I am
or need info on Alternative care that's helped me...
send me a line...
and any Myco's out there I'd love to hear from.
 
Take good care everyone!
 
 
 
Gluten intolerance, multiple food intolerance, colitis, Gerd, gallbladder problems, Asthma, hypoglycemia, malabsorption, Adrenal Dysfunction, Dysautonomia, HV6, tinnitus, hearing loss, deficiency anemia, EBV, cirulation issues, heart weakness and I'm sure I'm leaving out a few more...

CherylSue
Regular Member


Date Joined Jul 2007
Total Posts : 211
   Posted 6/1/2011 5:02 PM (GMT -6)   
My LLMD determined that my recent relapse is due to mycoplasma pneumonia.  My Lyme and babesia are under control.
 
Dr. B calls mycoplasma the "chronic fatigue germ."  You can read more by visiting Dr. Garth Nicolson's site on immed.org.
 
Mycoplasma and Lyme often go in hand.
 
Doxycycline, Azithromycin, and Biaxin are some of the drugs to treat it.  So are Cipro and Levaquin, but a lot of people have side effects from these.
 
Lauricidin pellets taken as a supplement also help.  Check the website for more info.  Lauricidin lowered my EBV where it no longer registers.  It is supposed to be good for HHV6, as well.
 
More and more LLMD's are recogninzing Myco as being a signficant co-infection.  You will need to treat it with abx, but herbs can be added like Olive Leaf.  Treatment is several months to a year or so.
 
Hang in there.

Post Edited (CherylSue) : 6/1/2011 5:06:25 PM (GMT-6)


LymeSince9
Regular Member


Date Joined May 2011
Total Posts : 38
   Posted 6/9/2011 7:10 PM (GMT -6)   
 
 
Oh Wow. Thank You CherylSue. I have been laid up
in bed unable to get to my computer till now
with this heat wave.
 
After having one horrific experience with Abx I doubt that
my GI: Colitis, Adrenal Dysfunction and Heart could take it.
I know for certain I've had this 13 years
and I fear the worst in fighting it off....it's been a rollercoaster so far
inter mixed with times of peace which are semi remissions I suppose.
 
As it is I was just in Lyme hell again from being given a steroid
for my adrenals by a famous LLMD and luckily only took half
the dose because I dropped to the floor 2 hours after taking it
unable to lift my legs, feeling like my heart would stop
only to be told at the ER that it was nothing and not from the drug.
 
My doc is good and agreed it could have activated things
but had not intended to.
I'm not writing to complain about my Doc...he is my life raft...
but to ask and just share my experience...
For 2 weeks after felt like I would faint every morning
but not normal fainting...free fall feelings...
and had a "pseudo seizure" while being given saline in the walk in clinic
after diarrhea and fainting a week after the initial incident.
I'm still not myself now with the heat wave.
Ironically was stronger than in years in April after doing one
hyperbaric treatment and 2 weeks of detoxification remedies at home.
 
Thank you so much reminding me
of the Lauricidin...and Olive Leaf.
I had some good experience with Monolaurin years ago
and I have HV6 as well.
 
I hope your journey is smooth and appreciate the info.
I have done all the mycoplasma reading you mentioned...
my Dr. is afraid to give me antibiotics knowing how sensitive I am...
 
to shoot off a few questions...
--Do you know anyone whose had success with HBOT?
--Do you know anyone who has significant adrenal problems with this?
--Do mini-strokes from it show up on EKG's? i'd imagine they would
but with our faulty healthcare system it's easy to question their accuracy...
 
Would love to chat more about it all
and hope this note finds you doing well.
 
Take good care and thanks again :)
 
 
 
 
 
 
 
 
 
 
 
 

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 6/26/2011 12:13 AM (GMT -6)   
 
Yes, I recently learned that I have mycoplasma through a live cell analysis.  It makes sense, given that I've had so many respiratory symptoms (asthma, extreme chemical sensitivities--esp. to formaldehyde, but also to cigarette smoke on people, mercury in dental offices, and other things that would "burn" and severely restrict my airways), none of which I had prior to the tick bite.  It was recommended that I go on a regime of supplements and certain foods for 4 months.  I was told that the most important thing was to get my immune system built up so it's strong enough to ward off the mycoplasma.  This advice was given by a nutritionist.  However, I will be beginning a program with another nutritionist for Candida and Leaky Gut, because I have gotten to the point where I can hardly tolerate any foods anymore.  After I get those things in order, my MD will assist me in following the program outlined by the nutritionist for the mycoplasma.
 
I also have "shot" adrenal glands, mitochondria dysfunction, and Hashimoto's.  I am currently on a compounded adrenal (and thyroid) prescription.  After I deal with the gut issues and the mycoplasmas, as well as the neurotoxins from the lyme, I plan on trying to get my endocrine system in order.  Dr. Theresa Dale (homeopath--I heard her speak at a health expo) has homeopathic remedies that assist with decreasing adrenal medication slowly while rejuvinating the gland itself.  That's the least invasive approach.
 
I recently ran into someone with Lyme who has had success with HBOT.  He said it has significantly improved his symptoms.  I am planning on discussing this further with him another time.  I saw an HBOT presentation at an Autism conference last month.  (I don't have Autism, but many of my Lyme/Babesiosis/Mycoplasma symptoms overlap).  From what I understand, HBOT increases the oxygen in the body--specifically in the brain.  This promotes overall brain function.  However, treatment must be done on a regular basis and can be costly.  Supplements are often recommended in conjunction with treatment.  From what I understand, treatment becomes more of a lifestyle than a temporary thing, because once stopped cold turkey, symptoms tend to slowly return. 
 
I don't know anything about mini-strokes.  I know of two people who use herbs to effectively treat seizures, although I don't know if they're strictly pediatric.  I met them at the Autism conference.  If you don't consider live cell analysis to be quackery in the way the internet portrays it, and you are able to find someone skilled in the technique, he should be able to see clumped cells, etc that are beginning to turn into clots, if you tend to have strokes and not seizures.  He should be able to tell you if you have fibrin clumps, protoplasts, platelet aggregates, or actual plaque material contributing to your strokes. 
 
I cannot recommend anything because I am not a doctor (I'm a music teacher), but if I was having mini strokes, until I could find a healthcare practitioner who could help I would do two things--increase glutathione and try to get the biofilm/plaques to break down.  To increase glutathione, you can consume aronia berries/aronia juice to stimulate the body to produce its own glutathione, you can get on a supplement that will help the body clear out the "junk" blocking the glutathione pathway (Dr. Dale has an HGP supplement that does this), or you can get on a quality supplement of glutathione itself.  Regarding the biofilm/plaques, you can get on 500-1000 mg bromelain 2x day on an empty stomach or use Dr. Dale's Biofilm Detox.  Ultimately, you would need to determine what's best for you with your doctor.  With colitis, you may have sensitivities to certain ingrediants and such--I don't know.
 
I hope something here iis helpful! 

LymeSince9
Regular Member


Date Joined May 2011
Total Posts : 38
   Posted 6/26/2011 7:39 PM (GMT -6)   
Hi Lyme14.
thanks very much for your elaborate reply...
i have not yet had a stroke though was warned of them...

thanks for the reminder about HBOT
and I'm so sorry that you are suffering like me...

I miss food so much and it's only gotten worse now that I'm herxing.
I am going to try to go back to HBOT asap
while on this protocol.

Thanks for the interesting info.
When I'm having a better night I'll write more.

Thanks again and take good care!

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 6/27/2011 11:44 PM (GMT -6)   
I miss many foods too...that's been difficult.  Healthy people don't understand.

dmgstar
New Member


Date Joined May 2017
Total Posts : 9
   Posted 2/11/2018 10:11 AM (GMT -6)   
Hi
I have had mycoplasma, and black mold issues for 7 years. This is the sister disease to lyme it does the same things to your body. I am going to a clinic in clearwater with Dr M. He does ozone therapy both Iv and spa in conjunction with supplements and other things. Yes it is expensive and insurance does not cover it But I have been to 30 docs previous and spent a fortune getting passed around while getting sicker with no answers. I have 1 more week to go before being re tested for mold. I feel pretty good I am really hoping this is the answer. But If I get better it was well with it. He charges 400 a visit and you pay for each session just like any other spa. My 5 weeks all together was 8000. It usually takes about 10 sessions of each treatment for lyme and mold. He also has cancer patients , aids and various people with life threatening issues. I believe other illnesses take many months to get better and truthfully if your too progressed with those issues you may not be cured, as he uses natural healing and building up the immune system. His walls are filled with letters thanking him for curing people. His website has a huge amount of information on his services and the different treatments. It is very informative. I was at the end of my rope. No doctors knew how to cure me. Dr M is very knowledgable. I am really hoping this does it for me. Best of luck to everyone.

Post Edited By Moderator (Girlie) : 2/11/2018 1:30:26 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32622
   Posted 2/11/2018 2:32 PM (GMT -6)   
dmgstar - Thanks for sharing...and that's great that you're feeling good. I hope this continues for you.


I edited your post only to change the Dr.'s name to initials only. (just to be safe)



I look forward to an update from you...so I hope you will share more with us down the road.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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