Great posts everyone !
My 2 cents in addition:
Don't let yourself get depressed. Believe in recovery.
Know that Lyme can be frightening in its attack on the body and mind. Don't let fear get the best of you-- RELAX. Go with the flow as calmly as you can.
Seek to understand your symptoms by talking with others who have Lyme and similar symptoms as your own. Symptoms can be very individual--shared by a minority, and they can be common as well-- shared by many.
Seek to understand the herx reaction. It goes hand in hand with Lyme. It can be your friend but often seems like your enemy.
Listen to your body. When you need to rest, REST! Rest is not 'giving up' or a succumbing to Lyme. It is healing instead. I believe a good 8 hours of SLEEP-- or more-- at night-- can do wonders. Plan on getting a good nights sleep! This can be difficult for some. Do the best you can.
Know that two steps forward (to feeling better) is ususally followed by three steps back and feeling worse. Be confident that this will reverse.
If you are on antibiotics, immedialtey begin taking a high quality refridgerated probiotic that has at least 10 strains and 30 billion cultures. Four capsules a day (IMO) between meals and lots of fiber. Drink Kefir and eat yogurt as well.
In my experience, I found no over the counter meds that relieve Lyme symptoms or pain. I didn't try any prescription meds so I can't speak for those. Relief IME only came through the good work of antibiotics. I did not go the natural route, so I cannot speak for that protocol either. But with antibiotics: symptoms WILL lessen. Some will disappear quite quickly never to return. Others can develop-- new ones you never had before. Some symptoms will come and go--- move from place to place. Know that this is a normal process-- not treatment failure. That is unless you are not being treated properly by a good LLMD.
That last part being said: Get thee to an LLMD right off the bat. Do not waste time with doctors who do not FULLY understand Lyme, co-infections, proper treatment......and/or will only treat on a positve blood tests rather than symptoms.
Keep a detailed calendar where you write down your symptoms (old and new) and your herx's--- their severity or lessening on a scale of 1-10. Day by day. Tracking your progress and your regressions will show your individual pattern of success, symptom remission, etc. .....
...... As an example, I had 18 symptoms before and during treatment. They ranged in severity from 1-10......for 8 months. Now I am down to zero symptoms (at this very moment) and holding there. It feels GREAT to be able to look back at all my calendars and see how far I've come! Calendars will also aid your LLMD in treating you.
Every day is a step forward. Every day that has passed is another one behind you on the journey to getting well.