Welcome to our community. I'm so glad you found us.
If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html
If your son's rash looked like one of these photos: farm4.static.flickr.com/3049/2563910060_f51c9238d3.jpg?v=0/www.lymedisease.org/wp-content/uploads/2016/02/bart-rash-lonnie.jpg
Then it's more likely that your son has Bartonella, another infection that is often passed along with Lyme - there are several infections that are commonly passed with Lyme disease.
Uneducated doctors mislead me for 40 years - I was diagnosed with all kinds of things until I finally found a doctor that actually understood these infections and how to diagnose them. It's a very common experience with Lyme patients.
If Bartonella is his 'top' infection right now (has the highest bacterial load), then Doxy won't touch it, there are other abx that need to be used. And, Doxy long term for Lyme isn't a good protocol to follow either, as it encourages the Lyme bacteria to go into it's round body form (also known as cyst form), which can resist attempts to kill the bacteria.
I'm glad you have your son in to see a doctor that may know more - but in order to find a doctor that knows how to properly treat these infections, we usually encourage members to seek out a LLMD - a Lyme Literate Medical doctor, as they have at least had some training beyond the 2 paragraphs that they are taught in medical school about
Lyme - and nothing about
co-infections that come along with it.
I would encourage you to ask the alternative/integrative doctor that you are taking your son to if they are affiliated with ILADS (International Lyme and Associated Disease Society), and if not, or if they don't seem to be able to follow a good treatment protocol, to find a LLMD that has had some ILADS training.
For information on finding an ILADS trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.
You can email the Tick-Borne Disease Alliance at email@example.com
for LLMD referrals.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:www.lymenet.org/BurrGuide200810.pdf
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)