Welcome to our forum! I am so sorry that you even have a need to be here, but we are sure glad you found us!!!
As Achievinggrace has said, it would be beneficial for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!"
, as it is packed full of relevant information and informative links that have been put together by our members here! Most of those who have read through it have said that it was very helpful!! We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge!
I really would waste what energy you still have on trying to convince an ID doc to treat you properly. If you really think that s/he would want to treat you using ILADS (International Lyme and Associated Diseases Society) recommendations, then call him/her on the phone and ask what protocol s/he would use if a person did have Lyme. That'll tell you if you should even think about
keeping your appt next week. If s/he doesn't treat following ILADS recommendations, then do run the other way!! You can find the ILADS recommendation here: www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
And here's why we generally say not to waste your time or money on an ID doc - although there are always exceptions to the rule! - archinte.ama-assn.org/cgi/content/abstract/171/1/18
I feel that you could most likely have chronic Lyme by now, and ID docs rarely acknowledge that chronic Lyme exists, and you will need to have a doc that really understands these infections in order to be able to eradicate them
from your body. Lyme Disease is very good at avoiding detection once it gets into the tissues and organs.
Something else that you should be aware of is the issues of co-infections. Although it happens, it's not all that common of a thing for a person to have just
Lyme Disease, as it likes to have friends to travel with. You need to see a doc that not only is willing to diagnose you clinically (as per the CDC), but knows what the heck they are looking at when seeing all of those symptoms!
Do you need help in locating a LLMD?
Co-Moderator, Lyme Disease ;)
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.