Welcome to the site!
I certainly wouldn't wish this disease on anyone, but this place offers hope, advice and compassion.
I went undiagnosed for well over 20+ years!! I finally got tested and diagnosed in August this year!! I have an appointment in New York (I'm in Michigan) with a LLMD that is amazing, I've heard!
Have you been tested for any co-infections? You want to make sure your doctor is aware of co-infections and if you have any. That was my problem with my first doctor. She didn't believe in testing for co-infections! I clearly have Babs, with all the symptoms, yet the doctor didn't believe I do, wouldn't test me for it. She kept insisting that I continue taking the (low dose) of Doxy which won't touch the babs! Hence the reason I fought to find a reputable LLMD that not only tests for co-infections but also treats aggressively with proper blood monitoring. I can't believe I have to wait over a month before I see him.
Keep on keeping on and keep fighting and be your own health advocate!! I was for years and years before finally getting an answer and now I have to stay on my toes to make sure I don't get 'taken advantage of' by 'lyme scams' out there.
Always research and ask questions before going into any new treatment. I learned my lesson the hard way and lost a LOT of money!