There's plenty of literature demonstrating that IVs are not necessary for many patients, even those who are very sick and have substantial CNS/brain involvement. There are risk factors that make IVs more likely to be necessary, including the length of infection, age of the patient (higher = more likely), acute heart involvement, immune function problems or a failure to tolerate oral medication.
I could read this post over and over and over again. I like feeling hopeful that I can treat my neuro lyme successfully by oral abx as well as supplements, especially since I have only had it 6 months now. Altho I am feeling good right now, I do still have the neuro lyme and one of the most frightening things to me is the possibility of having to take iv abx. I do not know why I am so against it or why it scares me. Many at my drs office do it and he did say to me that we might have to talk about it at some point.
I know I am not obligated to take ivs but I enjoy reading about successful information with orals only for lyme brain. I find it somewhat comforting.
Thanks for being such a good 'human search engine'