New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Forum Moderator

Date Joined Jul 2011
Total Posts : 1486
   Posted 11/4/2011 9:06 PM (GMT -7)   
Here's where I'm confused (and maybe it's brain inflammation causing that confusion!)...I constantly feel such pressure in my head like my brain is going to explode. I have all the symptoms of encephalitis, and I'm trying to persuade my LLMD to test and/or consider a clinical diagnosis of bartonella because I have every symptom of it. Something from burrascanos guidelines describes bartonella patients as having CNS symptoms out of proportion to the others. That's me. Also increases symptoms of encephalitis like confusion and cognitive problems. Again...that's me in a nut shell.

My question though is can I have encephalitis...brain inflammation, if my MRI, spect, and ct scans have all been normal?? I don't get it. Is the brain only inflamed when I feel like it is? Does it change that quickly? I'm just trying to connect the dots here, and they're not connecting. How can I have all the symptoms of brain inflammation and not have it be visible on tests??

Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 11/4/2011 9:36 PM (GMT -7)   
As I understand it, the aseptic encephalitis associated with Lyme disease is not something that is detectable in the scans because the changes are so subtle.

It goes away with treatment, honest!
Co-Moderator Lyme Disease Forum

Veteran Member

Date Joined Nov 2010
Total Posts : 571
   Posted 11/5/2011 6:10 AM (GMT -7)   
I'm sure I had some form of encephalitis from Lyme. Horrible head pressure and migraines along with vertigo and cognitive issues.

After being prescribed mega doses of Amox, the acute symptoms went away after a week but it took about a month or so--- and an eventual switch to Ceftin-- for my head to clear up completely. .

Now I feel that my brain/head is no longer affected by Lyme at all.

I agree with achievinggrace: It does go away with treatment, honest!
Doxy, Amoxicillin, Azithromax, Mepron, Ceftin-- now Flagy + Biaxin. 11 months of treatment and counting.

Forum Moderator

Date Joined May 2007
Total Posts : 36051
   Posted 11/5/2011 10:58 AM (GMT -7)   
The other thing is that a good majority of our symptoms change around - rashes come and go so quickly that it can be hard to even get a good picture of them, symptoms - like muscle spasms come and go all day long. I have had those same symptoms and feel like they would come and go as well, so I always figured that was the reason the inflammation wasn't seen in any MRI's that I had done.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, January 22, 2018 3:21 AM (GMT -7)
There are a total of 2,919,961 posts in 320,395 threads.
View Active Threads

Who's Online
This forum has 159438 registered members. Please welcome our newest member, Fritz777.
352 Guest(s), 3 Registered Member(s) are currently online.  Details
magoo2, testuser1234, MaryBee1975