Thank you everyone for your posts -- it is deeply appreciated. I have only just now been able to read all your posts and am not going to be able to read many articles yet, but will as I can. Now I am getting scared. Was going to the eye Dr (yes, full Opthamologist) every other day. He only had me on anti-inflammatory drops and had just started drops to lower pressure. I had to call in and to go in one day because vision was getting blurrier and I saw the partner. When he noted my viruses in the file, he kind of jumped into action and came back w/ 3 new eye drops and an oral anti-viral (Acyclovir).
The pressure is under control and won't know if it's glaumcoma til inflammation clears, which it hasn't -- this has gone on now for over 2 weeks. They have made me come in every day now and my vision is getting blurrier. It feels like they are scrambling. Today, both Drs examined them and they changed the steroid drops to something stronger. I don't think we are supposed to be taking steroids, but will drops hurt? We have GOT to get this under control.
It is $60 per visit and my funds are depleted, yet they say I must come in again on Monday. I miss hours of work and have gone broke now. Work also hurts my eyes tremendously, but Dr said it would not damage my eyes to use them. Had to drive home after dark last nite (nite court, I'm a clerk) and it was worse than trying to drive drunk (yes, I did that before yrs ago....). I could only see the lights of the cars and those hurt. Had trouble staying in lane. It is still getting blurrier and I'm getting more scared.
Plus, right now I feel like they are 'taking me for a ride' -- this is an extremely busy clinic. The Drs are highly rated, but they pack us in and go thru us like an assembly line. I've probably paid for 10 visits that could/should have been done in 3. I don't know what to do. I guess I need another Dr/opinion, but even more scared of starting all over and who knows about the next one?
This infection is viral, he is certain of that, but he does not know the 'agent'. They are scrambling because of past, and probably current CEBV and HHV6. I am afraid that if this is a herpes infection I will not make it. I can hardly take the pain at work and when driving, along w/ all my other crap, collapsed spine being my other worst pain.
What should I do? Who can I turn to? I did communicate w/ my Lyme Dr who wants me to see the eye specialist. Should I keep on w/ these Drs or start over? Should I flat tell them I have no more money? Why should I have to keep paying a full co-pay every day when every day is a 'follow up'?
I realize my eyes and my sight are worth tons of money, but there just isn't tons of money. ( My dog and my car need help too!)
I'm getting scared that this may be very serious. I'm scared that if I still have Lyme, my eyes are probably done for. I am so SO sorry for the bad attitude but I'm just beat down and the constant pressure and pain in and around my eyes has gotten to me, along w/ everything else. I dont know if I should have faith in this Dr or not. I feel like I'm going to go blind and it's to the point I don't know if I even care anymore, as long as the pain will go away and I can just lay down and rest.
Anyone want to shoot me??