I'm new here. Was recently at my wits end. I'm 24 years old. I've been fighting what I thought was Chronic Fatigue for over 2 years now. It's been in cycles. It's never been constant fatigue but I've been out for a month in bed before with it. It seems to have gotten better this last year since I've been doing lots of supplements. A few weeks ago I got a viral stomach bug that wouldn't go away. I was out of work for 3 weeks. It was horrible. After that I got back to work and worked a good bit and not long after I lapsed into a complete fatigue. No sickness or other symptoms. Extreme muscle weakness, bedridden, climbing stairs once a day would put me out for the rest of the day. I flew home to my parents so they could take care of me. After this I was at my wits end. I was starting to realize I was going to have to throw all of my dreams away and move back to where I'm from in North Carolina and be taken care of. I was ready to drive off a cliff.
So recently I tried a new Alternative doctor who's also an Endocrinologist. They're here in LA and Dr. L was determined to find out what was wrong with me. 2 and a half years ago I developed a very odd allergy to gluten out of nowhere. I would get hives if I ate it. I had everything done. Allergy tests, blood panels, and even an endoscopy. It was miserable. It was so confusing. By the end of that year I had my first collapse of debilitating fatigue and no doctor knew what it was. It was so scary. All I could do was lay there. Through the next two years this would happen to me 6 times. 3 of the times were accompanied with what an ER doctor called "Mild Viral Menningitis"
I never had a spinal tap I was too scared to. I thought for sure I was going to die. Nothing relieved my pain. IT was so hard and depressing. I haven't had that in almost a year.
I had a panel sent off that takes 10 weeks to confirm the type of Chronic Lyme I have. They actually do a culture. The doctor said that he had never seen Bartonella not accompanied with Lyme so he put me on 500Mg of Azithromycin once a day, Mepron Suspension 750mg/5ml (30ML twice a day for 14 days), Amantadine 100mg twice a day, and an assortment of herbs/supplements.
I'm now scared of having a Herx reaction. I'm so scared that it will come back when I had Viral Menningitis. I'm just wondering if anyone has had herx reactions responding to this sort of treatment and how bad are they really? I can deal with the flu, fever, headaches, sweating, etc but getting Menningitis again is something I'm not sure I can endure on my own. How dangerous are the herx reactions?
All throughout this though my lymph nodes have never been swollen. Not even once. Interesting fact. I feel semi ok right now. The drugs make me feel weird and I don't sleep too well. I'm also on 50mg of Zoloft. My psychiatrist wants to step it up while i go through treatment and she also prescribed .5 Xanax for the anxiety and muscle tension. I'm sorry this is a long post. I'm just looking for some reassurance on going through the treatment for this awful disease.
Post Edited (hamburg58) : 5/25/2012 7:32:50 PM (GMT-6)