Hi Andy D81! :)
I read your post and think we may have the same symptoms.
I've been limping and in terrible pain for 1 1/2 yrs. 3 different Dr's diagnosed me with Lupus and Fibro. (I was in denial and refused to believe it...I've always suspected lymes...I was mistreated 25 years ago. -My mother and twin sister also diagnosed with lymes but treated differently.)
It started with hip pain and limping and progressed to extremely sore to touch, dented tissue and unable to walk any real distance....no more than around house. It was localized to a small area on right side of thigh/hip region. I had a massage and the therapist said it felt like a torn muscle and she could feel the void in the tissue. Dr's thought it was bursitis. The only thing that came up on my MRI was Bone Marrow Edema and fluid. The ortho's and Rhemie's didn't have any answers.
My ANA's were elevated and had some bands on the LabCorp WB IgM P23 Positive and IgG P 41 Positive.
I recently had my blood sent to IGenex.
Negative on IGenex IGM and IGC but had the following bands
30 kDa +
So my doc is treating me for lymes with Bactrim 800mg. After 5 days I feel a little less pain in the hip. I'm hopeful for the first time in a year. I believe the spirochetes have attacked my hip/thigh muscle tissue. I hope this antibiotic can kill it deep in the tissue.
I wanted to see if you or anyone else has had a similar experience and how it was treated. It's been awhile since your post...I hope you are healthy and well and can share your experience and any helpful advice!
Thanks for listening!