Chronic head pressure + other symptoms

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Regular Member

Date Joined Aug 2012
Total Posts : 91
   Posted 8/29/2012 10:55 AM (GMT -6)   
To all those suffering, take care of yourselves and never lose hope!

Post Edited (xrunnerx08) : 9/5/2013 10:30:27 AM (GMT-6)

Regular Member

Date Joined Nov 2011
Total Posts : 265
   Posted 8/29/2012 11:10 AM (GMT -6)   
I would see LLMD...a very high % of lyme patients become allergic to mold...I did. When I read your story it could have been me. A natural dr a few months ago put me on oxygen for that severe head pressure and blood circulation problems and my head pressure and head are much better. I do 2 hours a day at 6 liter flow thru nose piece or 8 liters thru mask.
25+ dx and over 10+ specialists since Sept 2011 to determine I have Lymes Disease...Listen to your body....It SAVED my life! :)

Regular Member

Date Joined Mar 2012
Total Posts : 122
   Posted 8/29/2012 11:22 AM (GMT -6)   
I don't know what to tell you about the mold vs. lyme that you are wondering about. I do know that head pressure was one of my first indications that something was not right. I had a cold, as it cleared up this horrible headache/pressure hit me. At the time I thought sinus infection, because changing my head position made the pain worse, but it wasn't sinus. It ended up having to do with blood pressure...orthostatic hypotension. Fast forward a couple of years, my doctor is treating me for Lyme. I only have bouts of head pressure now, and the headache is rare.
For me the head pressure came up my neck and into my ears and face. It feels like your shoulders need to come up over your head. It is horrible. Sometimes laying on my stomach, the pressure comes and I have to reposition myself. It's super odd. My balance is still affected and I have to be careful about getting up and down too quickly.
So, my point is, the other two people that I know personally that are being treated for Lyme are the only other people that can understand it when I talk about the head pressure. It seems to be connected to it.

Regular Member

Date Joined Mar 2012
Total Posts : 85
   Posted 8/30/2012 3:19 AM (GMT -6)   
I have to share my experience with sinusitis with you so that you may take Lyme more seriously. I was in a similar situation as you 23 at the time, college student with only student health insurance and I began getting a lot of pressure in my sinuses then I would hear a pop and 1/2 a cup of fluid would run out of my nose at a time. I was diagnosed with a sinus infection was put on antibiotics and the infection lasted 6 months finally I started loosing my vision in my left eye. I had rapid growing maxillary sinus cysts and chronic sinusitis and the cysts were eroding the orbit of my left eye. I had an emergency surgery called a caldwell luc where they enter your sinus' through your upper gums, I also had 2 other surgeries including cleaning out my sinuses on the right side.

Guess what? 1 month later I had another rapid growing cyst and had to have another surgery! Well after the surgeries my life spiraled I developed a heart condition, migraines, fatigue, all over pain, weight loss etc etc. Finally I was diagnosed with Lyme and we tied it to a tick bite more than 9 years prior to diagnosis. Now I haven't had a sinus surgery in a year since I have been on long term antibiotics!! smilewinkgrin That's big after 2 emergency surgeries in 2 months. I do still have some inflamation and pain, also some nerve damage from the surgeries.

My point is the sooner you are diagnosed the better! The longer you blow it off the more damage you are going to do to your body. I know LLMD's are expensive but it is so worth it! Do you qualify for any financial aid? I paid for my first 5 llmd visits with a student loan I took out, also LLmd's want to help you if they can offer you discounts they will! The doctors and LLND's that I have experienced since discovering I have lyme have been the most kind and helpful people that I have ever met!!!!! They will help you financially if they are able, I see one of the top LLMD's in the country and I have had the doctor personally call me because he was worried about me and if I were to run out of meds what would happen. My only advise is get a referral and do your own research.

Good luck I hope that you get the treatment you need! :-)
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