Hi Heather's Dad,
Could you please share with me what things happened with Heather? I'm having to deal with the constant "Oh, that could be anything" answers that don't accept any significance for the erythema migrans rash that brought me to Lyme awareness in the first place.
The parents on this site who have described the symptoms and problems they caused have helped me know just what is going on when I get frustrated with his changes. I can remind myself to be patient.
Also, does anybody know other things that can cause a bullseye rash? He had small red centers, with rapidly expanding narrow rings around them. 5 different places on his body, one first, the others a day, 2, and, 3 days later. The rings spread to over 5" across.
Sounds pretty cut and dried to me but there is an unending chorus of "Oh, that could just be". The latest is that could be a wheat and dairy intollerance. I've seen plenty of recommendations that those foods be cut during Lyme treatment but I've never seen a bullseye rash attributed to the food.
So, along with "We don't have Lyme here" I propose "Oh, that could be (anything BUT Lyme)" be added to the list of phrases that make a person a candidate for a "Closed" tatoo on their forehead. Then we'll know we're dealing with a closed mind.
The Dr. a friend kindly sent us to yesterday is willing to order gluten and casein intollerance tests, but not a Lyme test until my son is free of these foods for 6 weeks. No recognition of the onset timing of his symptoms.
His feeling is all the symptoms stem from the foods. I think the food intollerance, if there is one, is a symptom of the Lyme that wasn't a problem before the rash.
He says there's a better test than the IgG and IgM but I didn't get a name - just a specific lab in So. Cal that is not Igenex. I'll call back and ask for that name so I can share it in case it's true.
Today is the opthamologist and field of vision test. If my son can stop from looking around to find the lights we may get an accurate reading! Fingers are crossed.