Thanks Shabbychic. Her lyme Dr. Dx her and started her on antibiotics just from symptoms and took blood same day for all the other tests. He is very educated on lyme and we have just got back from lab for bloodwork for co-infections. The Dr. is 4 hours away and we talk on phone or mail stuff to each other. He also is treating her immune system with all kinds of supplements and natural remedies like cordyceps, berberine, wild oregano oil, and others. So he is treating her holistically.
I have read both pages of the new to lyme and constantly refer back to it. But I did not see the ITT test on the list for lyme tests. We have not gotten the western blot back yet but he just took another one. Labs can be slow and I am learning patience.
Her symptoms are many and severe. Bartonella may be in the mix because she started with a severe rash that would come and go but now she has stretch mark rashes on body. She is herxing bad on doxy but you all have been great about detox info. Her joint pain and back pain are the worst but she also has peripheral neuro signs and fainting. MRI did not show much. I am choosing to give up on other Dr.'s and just go with the Lyme Dx. She has been to so many specialists with no answers. Her derm was great and has called to check up on her since. But the others were terrible. We had some very bad experience like you all have.
I have read "Cure Unknown" 3 times and am very aware of controversy. It is terrible. We do not live in an endemic part of NY but visit near Philidelphia all the time. That is where she got lyme. We do not have any Dr. near us. Noone here knows much about chronic lyme and how controvertial it is. So thank you for this forum and all your wonderful knowledge.