Anyone else have small fiber neuropathy from lyme?

I've finally gotten a diagnosis of small fiber neuropathy which is what is causing the burning/itching pains. 

Apparently, while many cases of SFN are idiopathic, lyme is a known cause.  Now on to try and figure out if the SFN is permanent, a cause of a continuing infection or damage. 

Anyone else diagnosed with SFN??

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Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: neurontin, cymbalta Prior meds: roxy, bactrim, doryx, amantadine, amox, minocycline, tetracy. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, grapefruit seed ext.

After reading the description of SFN, I can say that I have have healed enough to usually only be dealing with this and not always with balance problems and movement issues now. I have been using the Avena Sativa and have noticed that I occasionally have days where I have virtually no tingling/burning in my toes and fingers!!

My last husband had his right arm amputated right above his elbow from a freak accident at work, and they were able to piece it back together, but of course there was a lot of concern about how well it would function. We were told - and I was able to confirm that nerve damage heals slowly, and that it can take up to 7 years for nerves to regenerate.

Symptoms of SFN - according to this site: www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/peripheral_nerve/conditions/small_fiber_sensory_neuropathy.html

"The symptoms of small fiber sensory neuropathy are primarily sensory in nature and include unusual sensations such as pins-and-needles, pricks, tingling and numbness. Some patients may experience burning pain or coldness and electric shock-like brief painful sensations. Since SFSN usually does not involve large sensory fibers that convey balance information to the brain or the motor nerve fibers that control muscles, these patients do not have balance problems or muscle weakness. In most patients, these symptoms start in the feet and progress upwards. In advanced cases, it may involve the hands."

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Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

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