Welcome to our forum!! I'm so sorry to hear that not only you, but your young son have been infected with these infections! Although I am very glad that you found us!!
If you haven't yet, it would best if you would read through our "New to Lyme? Start here!" thread that sits at the top of the forum. It's packed full of important information, helpful links and pdf's, symptoms lists (as Lyme rarely travels alone!!), and even a list of questions that you can ask any doc that you are seeking treatment from for these infections.
You'll want to pay special attention to the post on detoxing (2nd post, about
1/2 way through), as it's something that you should start right away. It's the toxins from the bacteria that drive our symptoms - www.encognitive.com/node/5768
May I ask what dose of Doxy you were prescribed? If it's not a high enough dose, the only thing you will be doing is to stop the bacteria from replicating and we need to kill them off, not just stop them from reproducing!
The Bull's eye rash alone is enough to prove that your son has an active case of Lyme disease. Don't wait around on getting treatment for him, please. Chronic Lyme is much harder to treat. Unfortunately, the testing is horrible for both adults and children alike. It currently relies on the immune system response and Lyme frequently suppresses the immune response to the point that no reaction can be found - you are actually in the minority with your positive blood test!
Not only that, but the first order of business for the Lyme bacteria is to move from the blood into the tissues, organs and joints where it can more effectively hide from any attackers (anti-infective treatments of all kinds). There is also the issue that only 4 or 5 of the 100 strains of Lyme bacteria are tested for, so if someone has one of the other 95 strains, then there's no way they will test positive to one of the ones that are being tested for.
The most knowledgeable LLMD's diagnose based on clinical evaluations - by symptoms. That's why it's good to have a look at our symptom lists! You can get a pretty good idea which infections you are dealing with by going over them!
For more information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can email our long time member, Dan's Mother at:email@example.com
You can also email Stephanie at: firstname.lastname@example.org
You can also go to: www.turnthecorner.org/
if you want to learn a little bit more about
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
As for your precious son, I would suggest that you spend some time reading on Dr. Charles Jones' site (www.drjoneskids.com/
) as he is a world renowned Lyme Pediatrician and has written quite a bit about
these infections in children. You will want to find a Pediatric Lyme specialist if possible as well.
We do have quite a few young mothers on the forum right now, so I'm sure you will find quite a bit of support here for life as well as for your treatment!
We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about
our infections and the different ways to treat them! Remember - information is power with these infections!!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.
"Absence of proof is not
proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name