Hey girlie forum moderator would you know of any possible way to be tested for this out in arizona well for whipples disease I was tested for almost everything you can think of for a minute I thought I was dealing with a prion disease because over in europe they are causing prion diseases in people. Cdc found cwd prions in antler velvet. But I'd be dead if it was. It spread from my stomach to my lymph nodes to my nervous system and now my brain which is not a good sign. Stomach issues, barely being able to eat, losing weight and diarrhea and severe arthritis and everything comes back normal in blood work except cholesterol. Now having constant ringing in left ear lift sided headaches with alot of pressure in my head and alot of left sided intra ocular pressure too and constant memory and confusion issues. Difficulty walking too my balance is all out of sorts. Scary stuff. Actually most cases of whipples disease are showing up in endocarditis and encephalitis cases. Any thoughts or help would be appreciated I have no quality of life and I'm getting sicker day by day. I know how they test for it I just didn't know if maybe you knew of someone in the casa grande arizona city area that could test for it.
Carty - I don't know how you could go about
getting tested for Whipples disease. You do realize this is a lyme forum, right?
I did read a bit about
it after seeing your posts here - and a biopsy of the duodenum is one way..but that's quite invasive. Sometimes diagnosis is made by ruling out other diseases that share the same symptoms.
A lot of your symptoms are also lyme disease symptoms.
If I were you I would get tested through Igenex labs for lyme disease. it will cost $210 for the Lyme WB Igm and IgG.
And some of the antibiotics for treating lyme - are the same for Whipples disease: (bactrim, doxycycline, plaquenil)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi