Tick Bite Granuloma

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lepman
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Date Joined Apr 2013
Total Posts : 18
   Posted 4/25/2013 8:27 AM (GMT -7)   
  Hello.
            I'm new here. I had this Granuloma on my neck about 3 to 4 years ago and I never really noticed it. I was starting haveing boughts of dizzieness and joint pain along with some tremmor issues. I saw my GP when the dizzieness and balance became more of a problem when I was haveing driving issues, ( Near Accidents ) I really thought I could handle it with out going to the Doctor but when the dizzieness and balance became intense along with sensitivity to sounds, Makeing me way off balance almost knocking me down, I knew I was in trouble.
 
   The Doctors I was seeing thought it was either Manieeres diease or a vestibular issue and I had a lyme test done then, but I was also on antibiotics as well because they thought I may have an inner ear infection or to dry up fluid in the inner ear. It came back neg on the report. I went through very extensive testing and Mri's and the whole shabng with the Neurologists. It's been about four years now and during this time, I notice this Granuloma on my neck and I asked the Doc's what it was.
 
   They told me not to worrie about it, that it was nothing to worrie about. It was dark red and slightly raised and the size of a halfdollar, It really didn't hurt or itch , unless I rubbed on it then it would itch and have a slight bit of pain when I did rub it. It had a kind of scally feeling to it . I kept an eye on it as the years passed and my symptoms have progressed and are now numorous. I have had None of my Doctors or Neurologists or Specialists
be able to Diagnosse me and all seem to have differant speculations of what this is ,but none have even tried aany treatment what so ever.
 
  Mean while , as of present the spot on my neck has almost dissapeared, but there's a red ring around the area where it was much brighter. Almost like a slight scar ring. I heve read lots about Other conditions that fit my symptoms and have gotten so confused because the Doc's say, " it could be MS , or It could be Parkinsons , or ALS , or " You get the picture. But I decided that maybe they just over looked something more simple and just maybe they need to look a little closer rather than go into a much bigger diagnosis. Lyme, I have done alot of checking on my own and it explaines everyone of my symptoms and I just have a hard time thinking that all this  testing and many appointment and medications that don't help because I'm not depressed,could have been avoided.
 
   Not to mention loosing my job and insurance, If they would have tested properly, I would still have my life back. Now that I feel I'm on the right track with this and after reading the difficulties in getting the right testing and Difficulties in diagnosis and getting the proper treatment , especially if you have Chronic Lyme, which I feel I have. Doctors are afriad to treat or Only treat to standards from the very people who write the standards who have thier hands in the till, so to speak, and are the very ones who are supposed to help the people who are ill. But are wirtting these standards to get monitary gain through profiteering through your illness. Rather than letting the Doctors do thier job and cure you.
 
   They would rather just let it drag on and make money through Pattents and Pharma companies , makeing big profits off the Tests ( Labratory's ) Drugs that treat symptoms ( Pharma. company's ) Insurance ( Charging horrendous fee's for treatment ) Causing insurance priemieums to sky rocket, than let you get the cure. I have read about plum Island and the lyme connection, I have seen the Doctors who do try and treat this condition correctly and the persacution that they endure from the insurance companies getting thier lively hood pulled out from under them, and the ties Pharma has in getting thier Licenses pulled. And now they have to be secrative to avoid prosecution, But where dose that leave us ? The ones who need the treatment and In alot of cases, need to be treated fast and effectively.
 
   It has become so secrative and Doctors are so fearful, It's almost impossable for the average joe to get the help they need, and with out the fear that no one will. or the fear of loosing everything that they have just to get better. Some already feel they have lost everything already, Job's , House , Money ( 401 K's Retirement funds) Insurance. Some are so indebted that they can't afford getting the testing or treatments. Ya gotta look at a bigger picture here. The ones who have been going through this that are chronic and no longer have the abilities to, Drive, Work, and in some cases even talk or Walk, ( Bed ridden ) I don't know how far this goes with the hand tilling, but I have a feeling this goes way beyond even my comprehension and the power that these hand tillers have is probably beyond me as well.
 
   It just sucks that the average joe busts thier asses so hard in life to get ahead, and the very people who are supposed to be there for us, have the power to take it all away. I always believed that the people had the power, but the reality is Money is power and the people who have the money have the power. Ultimately it's about the almighty buck.
 
  
 

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 4/25/2013 8:33 AM (GMT -7)   
I have to agree with just about everything you've said here, Lepman. I was wondering though, was there a question or was this just a statement?
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 4/25/2013 10:51 AM (GMT -7)   
Both....The question I have is, I Had a tic bite Granuloma 3 to 4 years ago on my neck and was dismissed as nothing to worrie about...is it possable to still have it but on a lighter, but still visable way.....I can still see it were it was anyway.....But I have been told it's nothing.... 
 
 
 
   P.S. I can't do Out look mail stuff.....

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 4/26/2013 3:28 PM (GMT -7)   
From what I've read, most tick bite granuloma's will disappear on their own in just a few months, so I'm not sure. Does it seem infected in any way? And who told you it's nothing to worry about? If it wasn't a LLMD, then I would definitely tell your LLMD - which brings me to the question, do you have a LLMD or another Lyme Literate Practitioner that you are seeing?

If you would like to exchange emails with me, just let me know and I can email you to start things.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 4/28/2013 7:06 AM (GMT -7)   
Well,
I found out that the lyme rash will / can leave a scar, still lightly visiable. I don't have a LLMD and the Doc's I was seeing said it's nothing to worrie about. I have a ton of symptoms that all go with the lyme symptoms, Even from the start of it all. I have been going through this now for over 4 years and it's just getting worse. I am still very new to this and have done alot of reasearch on my own and I am very awhare of the difficulties in diagnosis and treatment and the persicution of MD's who treat this.

I know that I have this and it's been going on for so long now I believe it to be in the very chronic/ late stage. I just contacted a LLMD and it's a walk in type of appointment but don't really know what to expect upon the appointment. I know he will be testing first but with the scar from the tick bite will he even need to?. I think so, just to find out about co-infection possability. I had a CSF draw back in Oct. last year and they were looking for M.S. .

I know they didn't even report about anything but what they were looking for in the M.S. so it wont help the LLMD. The granuloma scar is still itchy when I rub it and it is still visable, but not raised or dark in color. Most doc's that I showed it to, when it was very visable, just shrugged it off and never thought anything about it, despite all of the symptoms I was haveing,and how fast they were progressing and worsening. Now that I got a chance to reflect on it and reasearch this, it really upsets me that this could have been stopped before it got this bad.

Just shows you how little Doc's know about tick bites at all. heck , I didn't even know what it looked like. I didn't even know it was there, just that it was itchy there and never really looked for anything until my wife saw it and asked what that spot on my neck was. leave it to a woman, LOL...they notice everything.
I was beeing seen by the V.A. hospital when I lost my job and insurance, they have been doing tons of tests ,but not for lyme....It's been three years with them alone, they tell me my symptoms are highly entertaning, but have no answers for the many symptoms.
 
 They do tell me that everytime I see them I just keep getting worse and worse, I really need to know what would be the best tests at this late stage and the questions posted in " what to ask the LLMD " I thought were vet good most are self explainable with getting the wrong answers from them but some questions I'm not litterate enough to know what answers would be a red flag...I'm not into herbs and detox type stuff,I'm not litterate enough about that either. I don't know if detox is something you only do while being treated or do ya do that anytime...
 
Lot's of things are hard to remember and if there is an order to them would be nice to know. Can this be treated without detox and herbals just the meds. I do understand that some, may never recover...Fully...but at this point I would greatly accept any kind of relief from this...even if it's only temp.
 

 

Post Edited (lepman) : 4/28/2013 4:48:14 PM (GMT-6)


Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 4/28/2013 10:57 AM (GMT -7)   
We all understand about having troubles staying focused and things like that! I think the majority of those on this forum that stay for very long are in the late stages, so you're in good company! LOL!

Were you considering going to the LLMD? I would suggest that you go to the 2nd page of the "New to Lyme?" thread and look for the list of "Questions to ask a LLMD". That will give you a direction and if you can get the answers to most of those questions, you can at least know what to expect from them!!

Also, if you haven't yet read through that thread, I would highly suggest it - it's got a ton of good and necessary info there!

I would like to suggest that you get started detoxing also. Almost always, those with chronic infections have issues with detoxing - meaning that their bodies don't or really struggle with it. Detoxing is covered on page 1 of the "New to Lyme?" thread - I believe it's the 2nd post down.

I know I've seen posts from members that have said that their bite site itches and even hurts from time to time. So this isn't all that unusual.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 4/28/2013 3:53 PM (GMT -7)   
LoL...I guess you were replying to my post during my adding to my post...LOl...I checked this site out perty well and I copied and pasted the questions, but like I siad I'm not sure what answers would be red flags. Some would be perty obvious, but being not as litterate as most I guess I need to get that wasy fast...LOL..
I love my country, but I don't have to love my Gov.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 4/29/2013 5:29 AM (GMT -7)   
You are welcome to either email me or list those questions here on the forum that you aren't sure of here and we can go over them. I should be able to help explain things so that you have a better understanding of what you are asking and which kinds of answers should be a red flag.

You'll find that the more you know, the better you will be when treating these infections, so learn all that you can! But until you understand these things, we are here to help!! Ask any questions you may have and I and others here will do our best to help you understand!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 4/30/2013 6:54 AM (GMT -7)   
I don't know what happened to my last post about my V.A. appointment yesterday. I do remember that the Neuro told me that the last blood clott I have now, can be caused by an infection,Because there was no explaination for it to happen this time, But I show no outward signs of an infection and there was no need to test for an infection.

Infact, is it not true that Lyme it's self is a Bacterial infection, with many possabilities of co-infections as well ? I have done some checking on Bacterial infections, and found that they are a direct cause for Blood Clotts, and it explains so much here.

If in fact I show no outward signs of an infection, why do I have and had a long history with diarehia ? This symptom alone is a direct link with an ongoing infection. I have also learned that in most cases typical rashes do infact go away with no scaring,in most cases. But I have also learned that the only type of rash that can scar most often is the Lyme rash.

The typical lyme rash, with the bulls eye, can also leave a scar, but in many cases they dissappear and go un-noticed. My V.A. appointment post,most likely got file thirteened and by whom, it dosent really matter.I said what I had to say about it then.

But during my appointment I did finally get him to do a western blott test IgG, and he agreed that the IgM would not be very benificial to do because I have been going on with this for so long. and that the IgM is for the erlier stages of Lyme.

It will be very interesting to find out the results either way, Thats if they even let me see them. Or if they will be honnest about the results. I don't have much faith with the V.A. Health care system anyway.

The Neuro Doc at the V.A. was just going to send me home and told me that they were only going to address new problems and symptoms because they could not find any difininative evidance to directly link this to a specific condition, Until he became aware of my New Blood Clott, and no reason for it to happen this time.

I do how ever have an appointment to see a LLMD this friday and I know already what he will find with whats going on with me. It will also be very interisting to compare the results between the two as well.
The LLMD expressed that either way he will get to the bottm of this.

Post Edited (lepman) : 4/30/2013 7:58:48 AM (GMT-6)


bluebyyou
Forum Moderator


Date Joined Nov 2006
Total Posts : 1952
   Posted 4/30/2013 8:09 AM (GMT -7)   
Hi Lepman,

I really glad to hear you are going to see a LLMD this week.



Let us know how it goes, okay?
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

bluebyyou
Forum Moderator


Date Joined Nov 2006
Total Posts : 1952
   Posted 4/30/2013 8:11 AM (GMT -7)   
Whoops, I had a technical issue there. I wanted to add that I sometimes freeze up at doctor appointments, and I find it helpful to have some notes and lists of symptoms with me.
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 4/30/2013 10:15 AM (GMT -7)   
I will....Believe me I will....
I love my country, but I don't have to love my Gov.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 4/30/2013 11:00 AM (GMT -7)   
Lepman,
No one seems to know why some threads just end up missing like yours did. It's some kind of a glitch in the system - it's highly unlikely that someone deleted your post if I didn't, and I can assure you that I didn't!!

From what I've read - which is admittedly little- about the VA and treatment for tick-borne infections, it's one of the hardest places to get that treatment!

I'm not really supposed to list other Lyme forums on here, but there is a Yahoo group that goes by the name of "Military Lyme" that you can search for - it's specifically for those who are or have been in the Military and are trying to get treatment in those facilities. I have no idea how active or how good the group is, but it might be worth checking into.

Although don't leave us completely!!! We would miss you! LOL!

Best of luck with the LLMD this week! And as Bluebyyou said, please do let us know how the appt goes! Use the questions that you understand from the "New to Lyme" thread. Maybe you could list the questions that you aren't sure about and get some help before you go to your appt?

You are right about Lyme being a bacterial infection!! So is Bartonella, Rocky Mountain Spotted Fever Ehrlichia & Anaplasmosis, although Babesia is a protozoal infection.

And actually there is some evidence that even during a chronic infection, the Igm will reactivate during different points in the infection - but I sure wouldn't bet on it happening.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/1/2013 5:00 AM (GMT -7)   
O.K.
Question 3 of on the list, Co-infections treat Before ,during or after treating lyme. Which is the best time to trest them ? Dose it make a differance ? Wouldn't you want to treat them during ?And if not during why not ?

Question 4 - Protocol ? How many are there ? whats the best one ? Is it not his discression as to which course of trestment to use according to your symptoms and what he finds in your system? And in how well you will be able to tollerate the meds and in how your body reacts to it all?

Question 3 and 5 are the same question, repeated twice.

Question 8 - Herxing , I know the body will react to the infection or bactieria dyig off and or trying to fight the meds to survive. I never herd of this type of reaction being called a herx. but it must be a new term I never heard of and I can accept new terms but really it would be normal for that to happen if in fact the meds are working for ya. And in some cases it will be very bad,I have even heard of some people dying from them. I guess a better question would be What do you do if and when a bad herx is happening, notify the LLMD first to assertaine how bad it really is and if an ER visit would be the way to go here?

Questions 13,14, 16 - I have some questions about those, especially If I were a doc treating lyme. I can just immagine someone standing by the door or out of sight writting down names and o takeing photos of the people who enter the building and picking out the MD's to keep a record of who's LLMD. That would be too easy to do and thier practice and license's would be in jepordy at that point as well.


I herd of some people say that they always showed neg. for lyme it's self, and have only pos. sings of co-infections, but arent co-infections considdered as the connection with haveing/getting lyme in the firat place or at least at one point? I'm not too savvy if that could happen but I wonder about those people?
I love my country, but I don't have to love my Gov.

Traveler
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Date Joined May 2007
Total Posts : 35859
   Posted 5/1/2013 1:28 PM (GMT -7)   
So question #3 - Many doc's get the Lyme treatment started first, then will add in treatments - once you are tolerating the Lyme treatment - for the next infection that you have the most difficulty with. Other doc's will only treat one infection at a time and will start with the co-infections. Just knowing what to expect has a lot of value as you go through this.

For me it was Lyme first, then Bartonella. Once the Bartonella was done for, we went after the Babesia.

Question #4- There are quite a few protocols - but understand that you do have a voice -to a certain extent - in what you are willing to take. Of course if you go to a doc that only uses pharma abx, then you can't ask them to use only natural abx.

Also they will have their preferences on which abx to use as well, but you can (& should) check with the members here, or refer to a well known source to make sure that you are on a high enough dose to actually kill the bacteria. For some reason we still have doc's only prescribing a high enough dose of abx to keep the bacteria from replicating. For example, Doxycycline, the most commonly prescribed abx for Lyme has to be at least 400 mgs a day (usually split into 2 doses at that strength) or it will only keep the bacteria from replicating, it won't kill them!

Yeah blush I reposted #3 as #5. Sorry! LOL!

Question #8 - You want to know how your doc wants you to handle herxing - when and if they want to be called or notified. Continuous herxing will stop healing - even though few docs understand this, it's still true. My doc told me not to herx for more than 3 days without calling her, as doses needed to be changed.

I'm not sure what you mean about questions 13, 14 & 16. Some docs don't want their name mentioned with the same words as Lyme Doctor - at least that was the way it was for a long time.

You will want to know that your doc is attending conferences or still getting training so that they are up on the latest findings with these diseases - no need to go to a doc that is using outdated treatments!

I'm one of those that wouldn't test positive for any of the tick-borne infection - at least until I had completed a full 12 months on abx. Then I would only test positive for Lyme and RMSF. Oh - and the abx that I took didn't even get rid of my Lyme infection, I had to go to natural treatments in order to do that.

As far as the co-infections go, it's highly unusual - not that it doesn't happen though - that someone will only have a Lyme infection, especially if they are chronic. The co-infection testing is just as bad as the Lyme testing - missing around 1/2 of those infected.

Hopefully, I haven't left you with too many more questions! But if I did, I hope that we can clear things up so that you have a better understanding!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/2/2013 5:00 AM (GMT -7)   
Wow,
You did a great job explaining the questions, it is a lot to take in and I hope I will be able to retaine this information. I do how ever need to know, will me being on warfarin hinder the Tests for lyme at all? I can't find any information about that other than, Clotting sometimes occurs when a picc is involved, And the use of warfarin is needed. But I have been on and off warfrain for about 2 plus years because of getting DVT's and have no explainable reason in getting them.

At least none that the doc's can explain, or want to. What I ment about the questions with,13,16, Is that the LLmd's them selfs put them selfs in jeprody just by the very act of going to conferances and lyme support groups, They would or could be discovered and singled out easaly If the insurance company invesitagtos wanted to, by takeing photos and takeing names.

It's a sad thing that this all has to go " Underground " so to speek, Just to treat and get treated...

I will stay in touch and explain how everything went / will go from there. Thanks again.....
I love my country, but I don't have to love my Gov.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 5/2/2013 5:32 AM (GMT -7)   
You're right about LLMD's going to conferences and getting more training putting them at an increased chance of being "detected" - but you do want one that is dedicated enough to their patients to risk something. The other alternative is that they stick with all the old info and don't help their patients heal in ways they could if they knew more!

We are all hoping that one day our doc's won't have to 'go underground' in order to treat us!

Please do stay in touch as you are able! We all want to know how things go for you!!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

bluebyyou
Forum Moderator


Date Joined Nov 2006
Total Posts : 1952
   Posted 5/3/2013 6:17 PM (GMT -7)   
Hi Lepman,

How did your appointment go?
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

Lyme Disease Forum Moderator

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/4/2013 5:54 AM (GMT -7)   

Gee, I'm back and confused more now than ever....I never even got to see the guy and I'm not even sure if he is a LLMD.... don't know if this is was Just part of the game , or what? But they told me I won't be seeing this guy until June 6 th....

I'm really wondering here because the lady that talked to me just did a kind of physic. eval thing and she started asking me some very specific questions like are you just wanting medication or and it felt as if she was trying to see if I would divulge stuff that I really didn't want to, and in order to protect this guy. I didn't say or mention," I needed to see the LLMD Doc.", I just said, “  I need to see, Dr. Such and such “...

I’ve got a real concern here, It seemed like they knew why I was there but, didn’t, if that makes sense. This whole thing is so secretive and stand offish you don't know what to say and  who say things too....I just felt that I wasn't going to say too much until I meet this guy and lay it out to him first before things go sour.

I guess the real questions here is did I make a wasted trip and Is this guy for real or not......I kind of got left in the dust here,I even asked the lady if doctor patient confidentiality is applicable here before I state anything specific. She kind of blew that off and avoided this subject.

she did how ever make sure, in a very weird way, that I got an appointment to see this guy specifically. And when I got out of the office she was kind of waiting at the door to see me off so to speek. That could just be her kindness and concern about me, but still have to wonder though. That never happened before with any Doctors appointments, and the exit was a long way from the office too. I really didn't know how to take it. and left there without any clue ( really ) if I was even going to be treated for lyme.

 


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 5/4/2013 7:16 AM (GMT -7)   
While that does seem a bit odd - even for a LLMD- please remember that these offices must always be on the alert for people wanting to turn them in to the Medical Board. They don't want to loose their license or have to appear before the Board and possibly have sanctions of any sort placed on them. Even we the patients are rather secretive about our docs! Notice that very few of the Lyme forums allow the names of doc's to be posted?

Did you get a chance to ask any of the questions we went over? If so, how was their response? Did you just talk? Did she suggest that you do/start anything?
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/4/2013 8:17 AM (GMT -7)   
No she didn't suggest to or even say anything about starting anything at all....,She was more of an intorductory type of thing but started off by first asking if I wanted medications...Which I thought very odd. then started by asking some general medical questiuions about my symptoms and then it really started into Mental stuff.

After I was done answering the questions she told me that she felt I was in perty good shape with my general mental status,not overly Depressed, hommicidal, suicidal, and felt she couldnt be very helpful, In treament from her personally, and felt it would not be unwarrented, just to get personal gain. I'm not fully sure what she ment by that , other than if she did, it would only seem like she would be doing it only for personal gain, So she said she would make sure I would get an appointment specifically with whom I asked for.

I tried to run some of the questions by her and everytime I tried to she just told me to give them to or ask them to the Doc. I was requesting to see. Strange, the more questions I asked the more she tride to avoid them. The whole thing just seemed out of place especially with where they took me for this part of it.
I mean everyone else that was there kept going to the other side of the office, whether they were new or not. but when I got called they took me way over to the other side of the office and I never seen as well as my wife , anyone else go to that part of the office.

I have noticed all of the secracy with lyme sites and with patients and of doc's and getting info for doc's who treat. I have even talked to a couple of people who told me that they have lyme. and only just reacently I have learned of one who is a member of a differant lyme site said they knew or know of someone who might help, but is very far for me to travel to.

But was very reluctant to talk with me about what they knew or know about it. So yes I am very aware of the secracy of it all and the need to protect all parties involved. like I said though, too much secracy can be very discouraging and missleading twadrs someone who hasnet experienced it first hand and major confusion is the result,

I mean come on here a person has the need above anything else here that they did actually in fact go to the right place or are about to, or are going to see the right doc. not leave them wondering or lost. And why the next appointment be so far out, especially when it's already in the chronic stages. I know whats another month ? but man another month seems like a life time, really.and not knowing for sure that this was the right doc or the right place....

Man I gotta tell you, it makes ya feel ,Here we go,,,another dead end with this as well. Or dam I just wasted time and money just to go all the way here, and didnt even get seen by the guy I was supposed to..that really makes ya wonder. Really....Anything, a sign, a wink, or simply pull you outside and talk, or slap ya or something that you aren't wasting your time or money here.

Even a simple phone call would be something here.I mean hell they got your phone number and stuff why not use a payphone and do a simple phone call even afterwards. This was really a bad experience for me.
E-mail, would work here too.I feel like I just got sent home with the I just got pumped in the rear with this whole thing.Took the money and ran thing...Even a letter would be nice.....

Now i'm left with , should I stay with this ? or, go somewhere else ? or, give up ?, or just try and live like this and just accept that this is my new normal ? and just try to keep adapting to this as it keeps getting worse ? where will I be in five or ten years with this if I do nothing at all ? Wheel chair bound ? bed ridden ?
Die from it? Sad, really sad....that this whole thing has to be so complicated and go this way.....
I love my country, but I don't have to love my Gov.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 5/4/2013 10:32 AM (GMT -7)   
Well, I do like your sense of humor!! LOL!

I can understand where you are coming from completely though! It can really put people off and make them wonder.

I would highly suggest that on Monday, you call the office back and tell them that you left confused. Ask who that was that you saw? What kind of doctor was she? Why didn't you get to see the other doc? And why won't anyone answer questions?

I don't blame you one bit for wondering about all of this and if it's worth it! I would be wondering too, and I've already been through a lot of this...but I don't put up with much from doc's these days......:-)

Whatever you do, don't give up on healing!!! Believe me, you don't want this as your new normal! You will only continue to decline. You can heal with natural and even with the "at home" protocols if you don't get satisfaction from the LLMD's in your area.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/5/2013 6:04 AM (GMT -7)   
I got this straightened out....He was just a physic doc who treats the physic issues of lyme...Gotta keep lookin....
I love my country, but I don't have to love my Gov.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 5/5/2013 3:40 PM (GMT -7)   
Here is what I always post for those that are looking for a LLMD in their area - if you are comfortable giving your general area where you live, then I will look to see if I have any recommendations as well.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD in the _______ area."

You can also email our long time member, Dan's Mother at:phassan@optonline.net

You can also email Stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

lepman
New Member


Date Joined Apr 2013
Total Posts : 18
   Posted 5/8/2013 7:14 AM (GMT -7)   
Found another doc...will keep in touch...
I love my country, but I don't have to love my Gov.
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