As soon as I left the facility I went crashing back down. I did the protocol they had set forth for me, but after 3 months out of their facility and 6 months of treating with them I am in worse shape than when I walked in there. The sad part is that nearly all the patients I was in treatment with are in the exact same boat as I am. There are a couple who are doing much better, but they're the exception and not the rule. Their success rate is probably around 10-20%,
First, let me say....a true support forum is a place where people should be able to go and hear both good and bad about the different options out there. Posts like yours are important...because it can help people make a better informed decision. Options...are what this lyme or lyme-like illness really need. I say be wary of people that "doth protest too much" when others say something bad about a regimen they promote.
Second, I am not surprised by your post. I have been reading and researching since 2006 and have read and observed many a sad story about regimens that don't end up being what they are built up to be. And the very expensive ones are the ones that really worry me most...because it really does appear to be about the money. If it walks like a duck, quacks like a duck, it probably is a duck.
The good news though...is I feel in the end...you are still probably ahead of the game. My personal experience and my gut tells me that this disease does change once a person gets some decent "first round, consistent" antibiotic treatment. It knocks something back so that "it" is never the same again, not as potent. It is as if the wind is taken out the critters sails. Where you go from here is what is going to make the difference. I also believe though with each next round of "all out battle" with antibitics the next time "it" comes back it can come back even more resistant to cure.
People told me "my lyme" would come roaring back if I quite the 2 year antibiotic treatment my doctor wanted me to stay on. I was on antibiotics ~ 8 months and I feel without a doubt, that quitting them was a wise move. It has been ~ 7 years since consistent antibiotics for me and even if "it" ever comes roaring back I am so much farther ahead then those that just kept hitting "it" with antibiotic after antibiotic regime. Like all out war. You will loose. I used antibiotics as my first round, to get where I could run again, then herbs, exercise and yes diet to keep my health.
Bottom line, I believe the critters just go into their cave until you are done hitting them hard and then they come back out again. The collateral damage from years of antibiotics is not a good thing.
Good saying "don't kill yourself trying to kill the lyme". Get in, get out, and try alternatives like herbs. Someday there will be a total cure and you want to be alive and as healthy as possible for that time.
Any proactive (safe as possible) move you do though is not a bad thing. Going there to the center has probably helped build your knowledge base of do's and don'ts. It may not have been a wasted trip. The IV antibiotics may have put a wrench in the wheel for the critters. You may feel miserable but you might still be ahead.
We all want magic bullets, thus the reason why so many people do have the "kill, kill" mentality. We don't want to feel bad and we just want "it" gone. Also the reason why so many people make the mistake of taking too many other drugs like pain killers, sleep meds and anti-anxiety meds. We have all been brought up...that if you have a cold...take a pill and the stuffiness, the headache, the cough and the sore throat will go away. Have a fever take a aspirin...but that fever may actually be good for you. So slow, consistent and safe is the better way to go. And any facility that promotes a total cure or promotes a "magic bullet" is one to be wary of.
I have met many, many people over the last few years with lyme and cancer. The people who do the best at Envita are those that commit to a very strict diet and life style change. The lyme patients, to me, seemed on the surface to be in worse shape that us cancer patients.
I don't quite know what to say to your post. I found it a little rough on people who probably have lyme or lyme-like illness. As someone who works in the field of health I can tell you that no quote "diet" alone is going to cure someone of a chronic disease that is a result of A + B + C = D. No immediate lifestyle change is going to totally undo the havoc or damage that a bacteria has done to your body. Lyme patients may seem on the surface to seem worse, but they also probably have a much better chance of regaining health overall then most diseases, if they get the right treatment. They have a bacteria, parasite, virus or a combination of usually 2 or more and if they are treated properly for those things they will be well again. I have seen it time and time again...you can be as disciplined and committed as just about anyone can possibilty be and it will not still be enough. All disease are cruel.
Post Edited (violets) : 9/9/2013 5:46:53 PM (GMT-6)