Welcome to our community! I'm so glad you found us.
I'm so sorry for your experience so far! You have found likely the best thread for opinions on those centers.
Since you're new here, and we don't know your story, I would like to ask some questions. Are you sure the LLMD that you were using was trained by ILADS? Were they using ILADS treatment standards and did they have you detoxing?
In your other post, you asked, "Has anyone had any success treating with herbs and antibiotics?" The answer is yes!! Very much so. I have healed using herbs only, and we have quite a few 'success stories', it's just that usually once people heal, they just want to get back to their lives. We do have a few members that have healed that are gracious enough to come back and post from time to time though! www.healingwell.com/community/default.aspx?f=30&m=3562412
If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html
Should you still wish to find information on finding an ILADS trained LLMD in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.
You can start a new thread with the title something like, Looking for a LLMD in the ________ area. That will get your request a lot more views that posting at the end of someone else's thread. But again, you need to have your email enabled in order to receive recommendations as we generally don't allow LLMD names to be posted on the forum in order to protect them.
You can email the Tick-Borne Disease Alliance at email@example.com
for LLMD referrals and you can go to tbdalliance.org
to learn more about
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
ILADS has their own referral system as well:ilads.org/ilads_media/physician-referral/
You will want to find an ILADS trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:www.ilads.org/lyme/treatment-guideline.php
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!