Pain management

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Regular Member

Date Joined Dec 2012
Total Posts : 83
   Posted 7/7/2013 4:11 PM (GMT -7)   
I have been dealing with tons of terrible pain, but all these doctors I go to don't want me to take anything except Tylenol. Which I just have to say is absolutely ridiculous, because Tylenol isn't going to help someone in chronic pain. But they said no NSAIDS, because of possible rebound headaches and the problems they can cause to the digestive system. They also said no narcotics, because they think I will become addicted, although I don't take pain meds often enough for that to happen. But anyways, the point is I have nothing to control my pain, no pain meds to help. I was wondering if anyone knew of natural remedies for pain? Or any other pain meds that have worked that aren't NSAIDs or narcotics?

Forum Moderator

Date Joined Mar 2009
Total Posts : 2155
   Posted 7/8/2013 8:49 AM (GMT -7)   
What doctors are you seeing? Do you have a positive lyme diagnosis and are you in treatment? I don't understand that they would allow you to remain in pain. There is no way the body will heal that way.
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: folbic, neurontin, cymbalta, plaq. and roxid Prior meds: bactrim, doryx, amantadine, amox, minocycline, tetracy. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, cats claw
FEELING GREAT THESE DAYS! Hang in there - it does get better.

Forum Moderator

Date Joined Nov 2006
Total Posts : 1952
   Posted 7/8/2013 9:26 AM (GMT -7)   
Hi AnDuncan,

Detoxing helps me with some of the pain. It takes the edge off.

What type of pain are you experiencing? Muscular, joint, nerve?
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

Lyme Disease Forum Moderator

Regular Member

Date Joined Dec 2012
Total Posts : 83
   Posted 7/8/2013 11:45 AM (GMT -7)   
I do have a positive Lyme test. I am seeing my LLMD, a neurologist, a urologist, a psychiatrist, a gastroenterologist, and some others that have kind of given up treating me. But the doctors who told me not to take pain meds was the GI doctors who were on call when I was inpatient a couple weeks ago.

And yes, I completely agree! But do you know how many times I have heard "tough it out" or "get through the pain" or "just manage the pain." Or so many other statements like those.

I'm having all, muscular, nerve and joint pain.
Fibromyalgia, Chronic Fatigue Syndrome, Chronic Daily Headache, Irritable Bowel Syndrome, GERD, Non-Celiac Gluten Sensitivity, Interstitial Cystitis, Migraines, Epilepsy, Generalized Anxiety Disorder

Forum Moderator

Date Joined May 2007
Total Posts : 36052
   Posted 7/8/2013 12:01 PM (GMT -7)   
HI Anduncan,
I'm so very sorry!! My hubby is a large man and is over 6 feet tall and gets told this all the time! It's very offensive and he wasn't ever asked if he wanted to try even migraine meds until we learned about them and insisted!!! He was told to 'tough it out' for years!! Ridiculous!!

Anyway, back to you smilewinkgrin
I would suggest that you try turmeric, boswellin, & ginger. My pain was controlled by turmeric and ginger combined with a well experienced acupuncture therapist. I still use 4500 mgs of both turmeric and ginger every day - split into three doses, and the acupuncture.

All nerve pain that I had was pretty well taken care of by the use of Avena Sativa tincture (Wild Oats in the "milky" stage). I took 20 drops three times a day when I was at my worst.

Then I'd say get different docs!!! If they don't believe that you are in pain like that, how can you trust that they believe some of your other symptoms or the severity of them??? Either way, I hope that you get some relief soon!
Lyme herbs used: "Chronic Tonic" from Disease.pdf for 9 months

Bart herb - only Houttuynia for 6 months
tx ended 1-2013

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.

Regular Member

Date Joined Dec 2012
Total Posts : 83
   Posted 7/8/2013 1:12 PM (GMT -7)   
Thanks for the advice, Traveler. I will look into the different pain remedies you suggested.
Fibromyalgia, Chronic Fatigue Syndrome, Chronic Daily Headache, Irritable Bowel Syndrome, GERD, Non-Celiac Gluten Sensitivity, Interstitial Cystitis, Migraines, Epilepsy, Generalized Anxiety Disorder

Veteran Member

Date Joined Dec 2011
Total Posts : 1648
   Posted 7/8/2013 4:36 PM (GMT -7)   
We are having luck with 1.5 tsp Japanese knotweed (powdered herb) decoction (tea) drunk throught the day. As you drink the tea, make sure you are getting the powdered herb with it. This is Stephen Buhner's most recommended herb for inflammation.
2008 - insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia. Waxed and waned with strep/viral infections.
2010 - Dx ADHD, motor tic disorder, high functioning aspergers, motor delay, probable PANDAS.
Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, nightly fever.
June 2011 - Igenex PCR positive bartonella, IND lyme. CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers have decreased from 160 (Jun 2011) to 80. CD 57 remains low.

April 2013 - Weaned from abx treatment. Continuing wth Buhner, Byron White, Zhang, methylation/detox protocols, Terry Wahls gf/cf/sf diet. Minimizing EMF exposure

Regular Member

Date Joined Apr 2012
Total Posts : 128
   Posted 7/9/2013 5:26 AM (GMT -7)   
I thought I would mention a couple things that helped me. They are both prescription medications but not controlled substances so a doctor may be willing to prescribe it.  Cymbalta is one, used for depression when it first came out but now is widely used for different types of pain. It does take about 4-6 weeks to realize the effect. The other is Gabapentin used for seizures but is very commonly used for neuropathy pain stemming from many different illnesses.
The effect is more immediate and this really helps my nerve pain that I have in my neck, upper back and shoulders.
The first time I tried the Gabapentin it was difficult to tolerate( sleepy, sluggish) so I stopped it. Six months later I retried it and it was great.
I  have been prescribed narcotics after shoulder surgery, etc. and honestly they really didn't help, this actually really scared me! Physical therapy that was given prior to and  after the surgery helped all my pain. The other thing that helps is dry brushing and then taking an Epsom salt and hydrogen peroxide bath. 
I hope this helps and good luck!
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