Please help! desperately need LLMD in Asheville, NC

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/11/2013 10:00 AM (GMT -6)   
I have moved from the Kansas City area to Asheville, NC. I have found a family Dr who has been searching for an ID Dr to help me. You know how THAT will go!  I have been on abx for about 3 yrs and am not better, my KC Dr believing due to mycotoxin poisoning.  I had moderate scoliosis growing up and my spine has now collapsed, I believe due to Lyme. I am late stage (since 2007), have sores all over my body, and my mental pain is often unbearable due to neuro-Lyme. So I need psychiatric help as well, but need from someone knowledgeable of Lyme and co's.
 
 I desperately need some help and need a good Dr before heading out on my own natural, etc treatment.  I was treated for Babesia (microti and WA showed in labwork) but I do not believe it is eradicated.
Given the pain I am in due to my spine, I can't take this illness or whatever it is that is left of it any more.
 
I am now on DA due to my spine and infections.
 
If you cannot post a Dr's name here, just let me know and I will give you an email address.

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 7/11/2013 8:39 PM (GMT -6)   
There's one LLMD in Asheville that I know of, but he doesn't have a good reputation. There's also a PA; I can email you her name. She used to work in Dr. J's office in DC, and she still flies up there once or twice a week to work with him, but her supervising doctor is Dr. F. in Chapel Hill.

There are tons of integrative and naturopathic modalities in Asheville, so you might want to see if any of those practices know about Lyme.

I go to Boone Complementary Medicine (it's all natural--a rife machine w. different frequencies, acupuncture and homeopathics), a practice which deals primarily with Lyme. Boone is a bit of a long haul from Asheville though. At first I herxed like crazy, but the acupuncture and homeopathics are starting to help. I can ask her about Asheville.

So, avoid Dr. B.; try the Lyme-Literate PA for starters (?); her first name starts with an A.

Margaret
Margaret, 52, Low immune globulin, Lyme, c. diff., complete thyroidectomy, remote breast cancer, IC, Babesiosis, Bartonella, etc.

Synthroid, Cymbalta, OTC allergy, Malarone, Hydroxychloriquine, Acyclovir prn, Imitrex prn, Gabapentin, Temazepam, Lamotrigine, Bystolic, Singulair, IVIG,///Colostrum, Glutamine, Multis, Calcium, D3, B vits, Probiotics, AcetylLCarnitine, Omegas, Iro

lemons and lyme
Regular Member


Date Joined Dec 2012
Total Posts : 21
   Posted 8/19/2013 9:02 AM (GMT -6)   
I am sorry that I do not have a doctor name in your area for you! I have been reading all of your posts though and I have to say I think that you are right, and that a lot of your problem is due to toxic mold. I am 23 and first got sick overnight in a VERY moldy building. Even when I left the building my symptoms got worse . When I eventually figured out it was Lyme and started antibiotics the physical symptoms went away, and a few of the brain ones, however, a lot of the brain ones remain. I have just recently seen yet another doctor without telling him anything, just my symptoms, he said I had toxic mold problems and then did a kinseology test to check. I do not know yet what the protocol will be, but I promise to let you know. However, I am very curious to hear what the protocol for toxic mold was from the infectious disease doctor you were once seeing. Can you please let me know about this? It may really help me...thank you so very much. I hope you start seeing some relief soon, and I hope the same for myself!!

limegreenmickey
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/19/2013 3:44 PM (GMT -6)   
I know an excellent LLPA in Asheville but I'm new to posting and don't know how to share the info.  If someone could tell me how, I can pass the name along.
 
Lisa

limegreenmickey
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/19/2013 3:53 PM (GMT -6)   
Oops! I see the information was already provided.

Lisa

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4429
   Posted 8/19/2013 5:12 PM (GMT -6)   
Hi +Lyme,
 
I was wondering about you and remember you were thinking of moving.  I hope you are happy about the move and I'm glad you don't work in that stressful place anymore.
 
Anyway, have you been detoxing?  Remember I told you about my friend who has a really bad back?  Even though she does not have lyme she takes the detox baths and it makes her back feel better. 
 
Most neuro symptoms (from my research and reading books) is caused by too much ammonia in the brain and if you start binding up that ammonia so you can purge it out of your body and brain, I think you would feel so much better as well as detoxing like crazy.   I know there are some products out there that bind up ammonia but the only one I am familiar with is Dr. J's Neuro-Antitox CNS/PNS Formula (I took that).    I don't know how much it is now but the last time I looked it was $48.00 plus shipping.
 
If you can handle the detox baths (don't know if you have a tub) then you get start getting rid of those poisons.
 
Hope this helps,
Denise
 
Well for 7 years without any symptoms ~ used Dr. Jernigan's protocol.

Our bodies are wise as they can heal themselves, all one has to do is nourish them properly. Thus it's about the Immune System mixed with Daily Detoxing, a dose of Positive Thinking, and Lowering Stress Levels.

I come back to help others for others helped me when I was sick. Pay it forward! :-)

JimJim
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/18/2014 7:19 PM (GMT -6)   
I have the same question. Any support groups or lyme specialists in the Asheville area? I'm asking because my elderly uncle was bitten by a tic last summer (not a deer tic), got a bullseye rash, waited some weeks before seeing a doctor who apparently gave him an injection of something but nothing more. Now he's having serious trouble breathing and thinks it could be related to Lyme (breath hunger symptoms?). He contacted me because I myself was misdiagnosed years ago and had to self-medicate, but I'm in DC and don't know anything about the Asheville area.

Many thanks for any information. And by the way, all other causes have been ruled out by other doctors. He's already at a diagnostic dead end.

Jim

SouthernChick
Regular Member


Date Joined Aug 2013
Total Posts : 79
   Posted 3/19/2014 6:33 AM (GMT -6)   
I am being treated by the LLPA in Asheville and I think she is wonderful. Let me know if you have any questions. She worked with the LLMD in Asheville for many years, and now works with Dr. J in DC at least one week per month and sometimes more. She know Lyme very well.
2006, Summer: Unk. insect bite raised a large welt w/ ulceration. Short round of abx.
2012, June: Removed 7 ticks one day (only one attached). Found another attached 2 days later. Large rash. 20 days of abx.
2013, May: Two attached ticks about 2 inches apart. Both caused rash. Scratched one off and removed other appropriately. No abx. Rash for about 6 weeks.

opugirl
Forum Moderator


Date Joined Nov 2012
Total Posts : 3713
   Posted 3/19/2014 12:39 PM (GMT -6)   
Hi Jim Jim,

Could you activate your email in your profile or click on my name and send me an email. I have a few names for you.

~beth
Forum Moderator

July 2007 - Deer tick bite w/ physician confirmed EM Rash - given 10 days of Doxy
October 2012 - My world gets rocked January 2013 - My world turns upside down
March 2013 - Igenex +, start treatment with LLMD, LLND, and herbalist
August 2013- Finished all abx, continuing with herbs and homeopathy, Feeling good!

jasngen
New Member


Date Joined Feb 2017
Total Posts : 1
   Posted 2/27/2017 8:37 PM (GMT -6)   
please need a good lyme literate in ashville as well. we were about to register with doctor p in raliegh but he is 5 hrs away and his reviews were terrible

Post Edited By Moderator (Girlie) : 2/27/2017 8:12:57 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 2/27/2017 9:14 PM (GMT -6)   
jasngen - you will see I edited your post - that was to remove the name of the Dr. and replace with just an initial.

We don't post full names on here - for privacy reasons.


I also want to welcome you to our community!

You can email me and I will check my list and see what I have for NC and send you names.

Just click on the envelope below my screen name.

we encourage all new members to read through the "New to Lyme?..Start Here!" thread.

Good luck!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1228
   Posted 2/28/2017 5:33 AM (GMT -6)   
Hey if you're going to drive 5 hours I've got a good one in Georgia. But I'm moving to Asheville soon so I'm interested in this too if there's anyone good

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 2/28/2017 1:01 PM (GMT -6)   
bump
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

filthygoat
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/12/2018 4:25 PM (GMT -6)   
I know I'm super late on this, but could someone send their recommendations to me as well?

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 3/12/2018 8:54 PM (GMT -6)   
If you Google "lyme treatment asheville nc" you will find a lady that works with Dr. J's clinic in Washington, D.C. a week or two each month. She lives in Asheville and has her own medical practice. Her initials are A.W. Should be easy to find, as it's a small city.

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 3/12/2018 9:05 PM (GMT -6)   
Psilociraptor said...
Hey if you're going to drive 5 hours I've got a good one in Georgia. But I'm moving to Asheville soon so I'm interested in this too if there's anyone good


Hey, Psilociraptor... Are you still planning to move to Asheville?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/12/2018 9:56 PM (GMT -6)   
filthygoat said...
I know I'm super late on this, but could someone send their recommendations to me as well?


Hi filthygoat - welcome to our community!

You can email me for some options in NC.


We encourage our new members to read through the information contained in the thread : "New to Lyme?...Start Here!"
It's packed full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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