We have all fought with one or many doctors along the way to finding health. It's really sad how much we have to fight for our own health. I went 18 years before I had a diagnosis. I went through 3 years of therapy because I thought my neurological symptoms were from stress.
I had a friend that was a psychologist tell me that when I felt all spaced out and out of my body it was because of severe childhood trauma and I must have therapy because I was mentally dissassociated. As she defined severe childhood trauma I was confused, why do I feel like this when none of that happened to me? She insisted I must have repressed it. So even people that care will literally tell you this is in your head.
I can't count how many doctors told me there was nothing wrong with me. I started to get afraid to mention my symptoms for fear of being labled a whacko. While having Lyme is no picnic, I am sooooo happy to know what it is and have an approach. I now know when I feel spaced out that I'm not nuts, I'm sick.
Groups like this have helped a lot, I don't feel as isolated as there are people that are informed and understand.
I am now working with a Naturapath and just started with the herbs. I'm scared of the herx but I understand it better and have a plan for detox.
You're right, it is frustrating, you're not crazy and You will get your life back