Hi Girlie... many thanks for your response!
My son is complicated... he has an 18th chromosome disorder, so has multiple disabilities. He also struggles with inattention, hyperactivity, lack of focus, some ASD symptoms, etc. I'm sure Lyme symptoms might be in there, mixed with everything else.
Well, our doctor is interesting. He is very "lyme literate," in that he has authored papers (his most recent: http://journalijcar.org/sites/default/files/issue-files/0263.pdf) and written a book ("Incurable Me")... Lyme is one of his things, I think. But I think he must take a different approach, given what you've said. He loves Alinia. I'm not sure why he chose to begin with it...
What is the starting point you mention that's usually used?
Usually LLMD's will do some of the more known lyme antibiotics...like Minocycline, doxycycline, azithromyacin, biaxin, Ceftin or Omnicef....etc.
Then maybe add in an antimalarial - like Mepron/Malarone...Alinia is in that category...but it's not usually the first med llmd's use.
I'm not saying it isn't good...just not commonly used to start treatment.
IND means "something" has shown...but not strong enough to be considered a Positive.
Some people call it a 'weak' positive.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi