It's been a while since this thread was active, but I found it during a web search today on Alinia treatment for Lyme.
Recently both my son and I both showed up positive on some Lyme testing. My doctor said I tested "positive IgM Immunoblot" (is this positive for Lyme?). For my son, he said:
Officially, the results are negative, but he had antibody activity on each of the antigens they tested for (IgM Immunoblot) but the vast majority were "I" or in determinant... too close to call. Not high enough to earn the "+" designation.
I usually see this this when it is not Borrelia burgdorferi one is infected with but another Borrelia group organism, such as in the Relapsing fever group - B mayamoti or any of the twenty or so species that are in the RF group.
It seems like I've had Lyme for over 10 years now, as they suspect that I was a maternal carrier.
I started treatment with Alinia a month or so ago, and had two weeks of feeling terrible, with bad fatigue, etc. then two weeks of feeling great -- better than I have in years. Energy, clarity of mind, positive outlook. Now it's kind of back to before (before treatment). I'm hoping to get back to those two weeks of feeling great somehow.
I wanted to share an Alinia source, since someone on this thread mentioned how crazy expensive it is. My doctor referred me to a pharmacy in India called AllDayChemist.com where you can buy the generic (Nizonide) for just 34 cents a tablet. You have to send your checking account info, but he never had anything untoward happen, and I did this without incident and received the medication about 20 days later, no problem. It's a much less expensive option and just wanted to pass it on.
Does anyone have advice on whether I should start treating my son? Another doctor mentioned I don't "actually" have Lyme disease, but this doctor seems to think that I have.
Any thoughts are appreciated. I'm new to Lyme. Thank you!
Hi miacara - welcome!
This is an old thread from 2013 (not sure if you realize this) .
ADC is a source that some of the members here do use. Not everyone is comfortable with ordering online from India though.
You were positive...and your son is IND. What's more important : Does your son show symptoms?
It sounds like your Dr isn't a Lyme Literate one?
Alinia isn't usually the starting point when we treat lyme and coinfections.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi