There is an organization trying to link all the different Lyme advocacy groups in a united front. They are interested in groups and individuals and I think we should all get behind them. You can check them out at
Partners against Lyme. If we do work together we will have much more impact and make a much bigger noise. This is exactly what many of us have spoken about and I am really hoping we can amplify our effect by combining resources.
Please take a look at the site and sign up. Just having a member list with big numbers helps show there are lots of us with big concerns. If people can share their time at events that's another big boost. I have only heard of East coast events myself, but there may be things out here I don't know of. I want to know.
We are all pretty loaded down with the personal side of this fight from what I can tell. I really believe though, that our individual fights will be much easier if we get the treatment standards revised and updated, get the awareness increased by a massive amount so our friends, doctors, and families understand what Lyme is and what it involves, get insurance coverage extended to aggressive treatment and can know with confidence that we will be taken seriously when our symptoms range all over the map.
It's a big order, but as a united voice we CAN get the changes made.
I am constantly struck by the resources spent on trying to prove my son has "anything but Lyme" when a month of antibiotics at the first bullseye rash might have ended the whole problem. There is logic on our side.
Has anyone got the skills/resources to print t-shirts? I have an order to place! (In detail in a past post)
Please, MAKE TIME TO FIGHT LYME!