New to Forum, new to Lyme

Tommy- I am sorry to hear you are having so many symptoms! I am amazed how these doctors can dismiss this stuff and say you are perfectly healthy. I was just diagnosed in September. Two months ago I was traveling with a memory foam mattress cover on my car seat because I was in so much pain I couldn't even sit on the normal car seat. I was practically crawling into the doctors office. Yet they told me that I was healthy and that I needed antidepressants. They suggested that my perception of pain was somehow distorted from stress. (insert eye rolling here)

I can tell you that I am much better now and I have only been on antibiotics for 30 days. I would say that I am maybe 60 percent better already. My LLND says I will need to be on the antibiotics at least 6-18 mos. I still have some pain but not nearly as bad as it was. My symptoms lessening has proven to me that I am on the right course of treatment. I still herx when I have increased my antibiotics or when I added the second antibiotic.

By the way I also have little red blood marks under my skin and I have a positive test for Babesia. I actually forgot about that symptom but I have often noticed that often in the last year. I had never heard that came from Babesia. Hang in there. Will you be able to get a LLMD in Sweden? Will they send your blood test to Igenex or is there a lab in Europe?

Ok, so here are my test results.As mentioned - it did not turn out the way I was hoping for.
Most of my symptoms are posted in the 1st post in this thread.I also suffer from Insomnia, heart murmurs, bumps on my head, testicular pains, spider-veins on both my cheeks,feeling of someone strangling me from time to time, breathlessness, nail-infectons (blue toe nails) rib-pain and pain in soft tissues. And I get really tired and heavy breathing just from shaving, turning myself during nighttime, put my shoes on, showering..And my LLMD does not seem to understand.I notice that some of my symtoms are 24/7 and others would reappear every 4-8 weeks, to last between 3 to 7 days.

Earlier tests shows that I got intolerance for a lot of foods, my body is storing metals(lead and aluminum) and I am loaded with mold and fungus(Candida most likely). I also know that many of my symptoms can be related to Candida, but I believe I got fungus/yeast for a reason.There is definately something living in my body that needs to be killed.

Regarding autoimmune diseases I have levels on Lupus anticoagulant RVVT 1,64 which should be <1,25.Also have levels on HLA B27 which can be an indication for Bechterew's disease.

Cholesterol issues and metabolism issues, tests show levels are going the wrong way, but not at all
severe yet..

Vitamin levels are good, except low on zinc and magnesium. Also a little low on D vitamin.

Quick question before my results: My first symptom was actually the head-pressure after a vacation in 2001. Got it 5-7 days after I arrived back home. Immediatly knew that something either was put inside me or something bit me. Wondering if Lyme can be stored in my body for many years before it actually start to give severe symptoms..? My symptoms have gotten gradually worse from 2007. I actually felt that something spread through my body..

I heard on this forum that the best blood tests only test for 4 or 5 of the over 300 strains that have the
potential to cause Lyme disease, so it's easy to miss infections.

So for what it´s worth, here they are: (Examined on some lab in Germany, Augsburg)
Don´t know if you guys have the same measurements on your tests, but I´ll give it a go and translate the best I can (hope itmakes sense):

s-m.pneumoniaeIgG - almost positive, hope you know ahat i mean
candida albicans <0,10 reference area<0,35

S-anti-hcv negative
s-anti-cmv IgM negative
s-anti-cmv IgG almost positive (don´t know the english word for it)
s-ebv-vca IgM negative
s-ebv-vca IgG negative
s-ebv-ebna IgG negative
s-anti-toxo IgM negative
s-anti-toxo IgG positive
S-anti-Lyme IgM negative
S-anti-Lyme IgG negative
Lyme IgM, alt.met. negative
Lyme IgG, alt.met. negative
S-M.pneumoniaeIgM negative
S-M.pneumoniaeIgG almost positive

measurement

S-M pneum IgM res 0,6 ref <1,1 s/co
S-M pneum IgG 158 ref <45 eiu
S-M pneum IgA 20 ref <12 eiu
S-C pneum IgM 0,1 ref <0,5 s/co

comments from doctors:

Cannot exclude the possibility for an actual infection



measurement

s-c pneum IgG 16 ref <30 eiu
s-c pneum res 3 ref <8 eiu
B-chl pneu Ltt 1,0 ref <3 SI
S-Ehrlichia IgM <20 ref <20 Titer
S-Ehrlichia IgG <64 ref <64 Titer
S-Ehrlichia LTT 1,0 ref <3 Titer
S-B microti IgG <16 ref <16 Titer
S-Bart quin IgG <64 ref <64 Titer
S-Bart hens IgG <64 ref <64 Titer
S-Rickett R IgG <64 ref <64 Titer
S-Rickett T IgG <64 ref <64 Titer
S-Lyme EIA IgM 0,01 ref <0,20 Titer negative Igm does not exclude possibility for infection.
S-Lyme EIA IgG 0,02 ref <0,20 Titer negativ IgG does not exclude possibility for infection.

S-Lyme Blot IgG negative
S-Lyme Blot IgM negative

measurement

B-Lyme LTT B-31 1,0 reg <4 SI
B-Lyme LTT Pmix 1,0 <3 SI
B-Lyme LTT LFAI 1,0 <3 SI
P-CD57+ 40 reference area: 100-360
P-NK-Cells(%)28,5 ref 6-29 %


Comments:
Alomsot positive for Mycoplasma IgG.
Earlier toxoplasmosis

CMV: Possible earlier CMV infection
Lyme:Doesn´t exclude early Lyme
Lyme arthritis is characterized by high titer igG

Anti-DNase_B: 100 U/ml Titers within normal
Lyme_IgM not detected
Lyme IgG not detected
Chlamydophila_pneumoniae IgM anti not detected
Chlamydophila_pneumoniae IgG anti not detected
Anti-C6 Lyme: Detected - Don´t know what this means
Lyme serology unlikely clinical significance
anaplasma igG not detected
Immunoblot Lyme IgG not detected reactive for p41, conclusion negative
Immunoblot Lyme IgM negative
Mycoplasma pneumoniae IgM not detected
Mycoplasma pneumoniae IgG Detected, could be because of earlier infection
Tick borne encephalites IgM Not detected
Tick borne encephalites IgG Not detected


I ordered myself different kinds of herbs (japanese knotweed, sida and houttuyunia) we´ll see how it works.

Does it make sense to anyone at all, any thoughts?

Hi tommy,

It would actually make more sense for you to be negative then positive. I cannot 100% say that they use the same test for lyme in the US but most likely, that is the case. They test for only one US strain of lyme, over 30 strains of borrelia have been identified in the US alone. The tests only work for that one!

Given your symptoms and the appearance of some auto-immune indicators I would not rule out lyme for sure. Keep in mind I never had a true positive through regular labs also but had clear herx reactions and improvements in bloodwork after treatment.

Follow your gut. You should know on those herbs if it is right for you. I would focus on cleaning up your diet and detoxing. Then when your herbs come in your detox organs should be better prepared to get the bacteria out!

~beth

Thank you so much opugirl and traveler! Ordered my herbs and can't wait to see how it turns out! One last qst: Is it possible for Lyme or co-infections to be stored in your body for many years without giving much symptoms, suddenly to spread and give you hell?

Will metal toxication also dissappear in time if treatment works? Thank you again!

Also forgot one test that shows that my blood will clot easier than normal, or maybe it´s thicker i´m not sure. But i know this also could be a factor for Lyme - P-Anti-beta2-GPI igG is 26,4 which has a reference area for <20.

Hi Tommy,

Welcome to this wonderful forum!  I read most of the posts here and I don't mean to add to any confusion but I am more concerned about the blood clot in your leg and both lungs.  You said you were taking medicines for this (I am guessing blood thinners) but have you had the blood clot checked out lately?  I read there are surgical procedures for this if you still have the blood clot and it's not getting better.  

If it were me, I would concentrate more on the blood clot right now then start treating lyme.

Just my thoughts,

Denise

MarieLS - I sent you an email, hope it´s ok!

"I buy most of my herbs and supplements through an American online shop (don't know if I can post it here, but if you google 'supplements ih' you'll find the whole name right away, it has to do with herbals - lol)"

Yes, it's a good thing to share where we can shop for these things online, as long as the person posting doesn't receive any kind of compensation for someone going to the site or from someone buying something from the site!

So if you are just sharing that you had a good experience with a place to buy herbs, supplements or whatever - then please do!

As long as they don't have massive brain fog!! LOL! So that everyone knows which company we are talking about, it's Iherb.

And my disclaimer:
***I neither work for this company, nor do I receive any compensation in any form from people visiting the site or buying from the site.

Yup - I have gotten stuff from them. They are safe and reliable.

OK, thank you both!

Think opugirl told me to get 2 ounces of each, then I should notice difference in my body within 6-8 weeks slowly adding..

So if I get the following I should be alright?

http://www.iherb.com/NutraMedix-Houttuynia-Microbial-Defense-1-fl-oz-30-ml/47438#p=1&oos=1&disc=0&lc=en-US&w=houttuynia&rc=3&sr=null&ic=1

Sida acuta extract 2 ounces from this site, since they don´t carry it elsewhere: http://woodlandessence.com/herbal.htm

And the following from http://www.1stchineseherbs.com/:

http://www.1stchineseherbs.com/hu_zhang.html (seems they only have powder?)

http://www.1stchineseherbs.com/wormwood_aerial_part.html (should I get the liquid extract?)

http://www.1stchineseherbs.com/teasel_root.html (cut/sliced or powder?)

Seems they carry more extracts from woodland than others..

Tommy

I'm not sure what 'cut' means actually..? How many am I supposed to get to make it work, cut and powder?

Tommy