I know what you are going through... I visited so many doctors since I was 15yo (I'm 36,5), not one could help me. The clearest answer I got was from the rheumatology department at the academic hospital in my city, after a week's admission , and all possible tests..'Miss, there's certainly something wrong with you, but we can not find it. You are a unique case.'
It really hurts, doesn't it? Especially the shocks when you're walking around.
I know that corticosteroids are often prescribed to bring down the inflammation, but if you are suspecting Lyme or another infection, it would really be better to avoid immunosupressants. Last time I had a severe flare (6 fresh nodules appeared in just one day, on both legs) I had 1 steroid shot, but only after the approval from my LLMD, because I was having a systemic infection that wasn't cooling down with iv abx. He stressed on 'one', not more than that. Not to scare you, but this is an article on the subject www.lymenet.de/literatur/steroids.htm
If you're thinking Lyme Disease or a coinfection, I would like to advice you to see a LLMD (a Lyme literate doctor, not an infectuous disease doctor). We can help you find one.
There's the ILADS website where you can ask for a LLMD in your region of choice: ilads.org/ilads_media/physician-referral/
Or you can post a request here: 'Looking for LLMD in ____'. Our members can then get back to you with their information. But only by pm, cause it is not allowed to post dr's names on this forum. If you choose this, you will have to enable your emailaddress (My Profile, then Edit Profile, then click on Show my Emailaddress). If you wish to stay anonymous, but your address isn't, you can create a new one just for this purpose.
If you have any questions about
your symptoms or which tests to take, please don't hesitate to post. We'll be glad to help you. If this is the case, it would be better to start a new thread so that the subject of your question would be visible to everyone
opening the Lyme forum.
I really hope you'll get an answer soon.
Moderator, Lyme Forum
Started getting sick about
20yrs ago, diagnosed 3yrs ago.
Started treatment August 2012: 15 months of abx, followed by a modified Cowden Protocol since December 2013, now using the Chronic Tonic. On LDN for pain.
~The wound is the place where the Light enters you~