For me, the big change came the moment I set bounderies for myself. Meaning that I started to accept my situation and set the rules of MY life, not let others define and set the rules for it. It's something we are entitled to do. Sometimes we forget that.
Most of us are 'overly' empathic individuals, because of our disease, we forget ourselves...
We need to learn how to reach out for help, instead of reaching out to others, because we do not have the reserves to do so right now. Our self image is low because of the mental impact of this disease, it makes it even more difficult to ask for help, you don't want to intrude into someones life, you don't want to wine, you feel not worth it, so to speak... but you are worth it, if others are worth it, you also are.
I'm convinced too, that in times of need, you sometimes meet people that are just right for you. I had some amazing almost unbelievable encounters with people helping me spiritually. But I still can't ask for practical help, struggling so much to ask for physical help...
This is not a plea in favour of selfishnes, not at all.
A very wise and precious friend of me always repeats this when I'm talking to him: 'a conscious no is a yes, always keep that in mind M'.
I've been in such dark places... for so many times, I still am very much. But each time I bounce back. You'll make it, we are a strong species.
Every time I think of the future, I get panicky, so unsure of my life and myself, so I avoid it as much as possible. Day by day is my motto..., not just a motto, but something I really try to live by, that I have to remind myself of all the time.
Don't loose hope
Lyme & Bartonella. Sick for about
19 years (34 now). Started treatment August 2012 with abx (ILADS protocol, different combinations) + Buhner's Core Protocol. Leaky gut, heavy metals, EBV, XMRV, erythema nodosum, Hodgkin's Lymphoma at 15, Lyme arthritis, many neurological symptoms, food allergies/intolerances, histamine/chemical intolerance and much more.