LLMD in Illinois ?

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Roxie60
Veteran Member


Date Joined Jun 2011
Total Posts : 1150
   Posted 11/17/2013 3:45 AM (GMT -6)   
Requesting llmd recos for Illinois or surrounding states. Thx.

I'm not that hopeful since for years doctors in IL don't believe people in IL get lyme and refused to test when I requested.

Healing98
Veteran Member


Date Joined Jul 2013
Total Posts : 1396
   Posted 11/17/2013 12:03 PM (GMT -6)   
Hello fellow Illinoisan! My LLMD is located in Chicago's northwestern suburbs. He is very good and understands TBD infections very well. He has published a peer article on Lyme, has written a book and has been quoted on Lyme articles within the medical community.

If you wish to have his information, please let me know and I can forward it to you once you enable your email.

Roxie60
Veteran Member


Date Joined Jun 2011
Total Posts : 1150
   Posted 11/24/2013 6:18 AM (GMT -6)   
I would love to hear more as I am now on a wait list for another LLMD and the other one I was considering is in WI and probably too far for me to drive. I will enable my email and thanks.

JackieM89
New Member


Date Joined Feb 2014
Total Posts : 18
   Posted 2/26/2014 1:31 AM (GMT -6)   
Hi everyone. I'd love information about the doctor. I believe my email settings allow communication that way. I had to beg for a measly ELISA with my GP. I never was too sure about pursuing Lyme because the LLMDs are hard to come by, but I'm done allowing myself to not pursue this aspect of my medical issues the same way I pursue the "mainstream" medical issues. My wedding was supposed to be in two months and no longer is because I couldn't get through a ceremony right now, let alone a party after. I need to get on the road to recovery!!

Healing98
Veteran Member


Date Joined Jul 2013
Total Posts : 1396
   Posted 2/26/2014 10:26 AM (GMT -6)   
Hi Jackie, I will send you the information via email. Have you considered getting married now and having the celebration when you heal? This way it would be a double celebration. Lyme healing can take months or years depending on how infected you are and the treatment that you chose to follow. It would be great to have a spouse next to you to be with you in your journey to recovery.

I depend on my wife so much that I would not be here if it wasn't for her. She has been there for me every step of the way and has encouraged me to continue on when I didn't have the strength to take one more step.

JackieM89
New Member


Date Joined Feb 2014
Total Posts : 18
   Posted 2/26/2014 12:49 PM (GMT -6)   
Yay! My first response. Thank you!

Thanks for the idea on the wedding. One reason we don't do that is several people we want at the wedding and reception would have to travel cross country, so I wouldn't want them to do that twice for our wedding. I am actually quite content waiting. I want my wedding day to be something I look forward to, not something I have to get through which is what it would be now.

My fiancé has been supportive of my journey for the past 3 years -- I have Ehlers Danlos Syndrome and POTS -- you are right it is invaluable to have that kind of support.

Healing98
Veteran Member


Date Joined Jul 2013
Total Posts : 1396
   Posted 2/26/2014 1:00 PM (GMT -6)   
Ehlers Danlos Syndrome and POTS are two symptoms that could be from the Lyme infection, unless you know for sure that Ehlers Danlos Syndrome was inherited. Lyme loves collagen and does impact collagen in the eyes, GI tract, joints, skin, etc. It can also impact the heart in a way that mimics POTS. This is the reason why Lyme is known as the great imitator.

JackieM89
New Member


Date Joined Feb 2014
Total Posts : 18
   Posted 2/26/2014 8:20 PM (GMT -6)   
Unfortunately, I do know for sure that my EDS was inherited and my specialist said 70% of EDS patients get POTS on some level. My great aunt, Mom, and sister have EDS and my sister had POTS as a teen. Unless some infectious disease was passed down from my great grandmother to all of us? She didn't have EDS by the way and lived in her own home until 93. :)

I've accepted the EDS is here to stay, but I think if I could figure out this infection clearly going on with my lymph nodes, I could get the POTS under control.

Whenever I try to up the activity level to help with the POTS (or my sanity), I get a fever and my lymph nodes swell up. Sometimes I ignore it, but it just compounds and after a week or so of "overdoing it", I won't be able to move my arms because the armpit lymph nodes cause so much pain. If I just do bed rest and don't do things like get on the computer too long or talk too much, they stay down until late evening, but that is just no way to live life!

JackieM89
New Member


Date Joined Feb 2014
Total Posts : 18
   Posted 2/26/2014 8:21 PM (GMT -6)   
It is interesting how many systems Lyme impacts. I first heard about Chronic Lyme through another POTS patient who found out that was the root cause of her POTS.

what's going on?
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 2/3/2018 3:58 PM (GMT -6)   
I'm also looking for an llmd in Illinois.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 2/3/2018 4:09 PM (GMT -6)   
Hi and welcome to our forum what's going on?,

This is an older thread so you may not get too many members responding.

We can help you find an llmd for your area. You will have to enable your email in your profile to receive responses from members.

You can also email me and I will check my list for your specific area.

You can also go to ilads.org and do a physician request and in a few days they will email you some names.

We encourage all new members to read our"New to Lyme" start here thread at the top of the page. It has important information on Lyme, detoxing, testing, symptoms and much more.


I wish you the best of healing and take care, Jo

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/3/2018 4:52 PM (GMT -6)   
Hi What's going on!
Welcome to the community!

Goshawk has given you some really good information, I just wanted to stop by and say welcome!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/3/2018 6:01 PM (GMT -6)   
I would love to get more info on the LLMD in Chicago that you mentioned.

I live in Fort Wayne, Indiana and go to one in Indy, but she hasn’t helped me all that much after a year of treating.

Does this LLMD treat pretty aggressively/pulse and is he/she good at understanding coinfections like bart and babesia?

Also, if you could tell me the cost that would be great too.

Please email me the info!
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day
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