Posted 12/28/2013 7:19 PM (GMT -7)
I think some of what you folks are describing are precursors to seizures; not that you're going to really have a seizure, but that you're over stimulated.
Last fall, I was at a beach house with a bunch of women of varying ages, and they decided to do something called ecstatic dancing. They turned the music up really high, and started dancing. I freaked. I had to control myself to keep from running outside. Then, I went out on the beach, and even looking at the moon hurt, bc it was too much light. I had to find the darkest place on the beach, and I just sat there, getting bitten by sand fleas. I just wanted to crawl into a little hole.
It's so hard to feel that way when you want to socialized. I had a friend who couldn't even stand going to a quiet restaurant with low lighting to drink a glass of wine. Now, she did have seizures, and ended up being bed ridden.
The thing is, how do you explain this kind of thing to people? Most people have no clue why you can't stand light, noise, loud voices, etc.
Margaret, 52, Low immune globulin, Lyme, c. diff., complete thyroidectomy, remote breast cancer, IC, Babesiosis, Bartonella, etc.
Synthroid, Cymbalta, OTC allergy, Malarone, Hydroxychloriquine, Acyclovir prn, Imitrex prn, Gabapentin, Temazepam, Lamotrigine, Bystolic, Singulair, IVIG,///Colostrum, Glutamine, Multis, Calcium, D3, B vits, Probiotics, AcetylLCarnitine, Omegas, Iro