Seeking Lyme disease treatment in Southern California

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Seekingtreatment
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/26/2013 12:58 AM (GMT -6)   
Please advise of competent, knowledgable treatment center or dr to treat Lyme disease in Southern California. (Marina del rey)

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 12/26/2013 4:27 PM (GMT -6)   
Hi Seeking treatment,
Welcome to our community!

Do you or someone you know have Lyme and/or other tick-borne infections? We like to know just a bit about a person & their situation before give out much information on our docs since they are still quite persecuted just for helping us.

I do hope that you understand, and are willing to share just a bit about you and your situation - or your 'story'- as I do have a few names that I could share with you.

Have you read through our "New to Lyme? Start here!" thread yet? If not, I would greatly encourage you to as it's packed full of important information, symptom lists (as Lyme is rarely the only infection that gets passed at that time), detoxing suggestions and more!
Treatment for Lyme & Bart ended Dec. 2011 - no active symptoms
Treatment for Babesia ended Dec. 2012 - no active symptoms
Healed and loving life!

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.

Seekingtreatment
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/27/2013 10:02 AM (GMT -6)   
Thank you for your response. My 26 yr old daughter has just received a prelimary test result that shows positive for lyme. There are two other parts of the test that will not be completed for another week so we are waiting for those results to confirm. In the spring she was training for a triathalon and thought she might have possibly been bitten by a spider on her upper leg. There were three spots with the one In the middle the largest. Little thought was given to it until later. She competed in a tri at the end of May and was training for a second when she appeared to have an acne problem her jaw line. She went to a dermatologist and was diagnosed with a staph infection. Her health began declining from that point on. She was diagnosed by her kaiser general doctor with another infection and was given four different kinds of antibiotic ove the next several months. She was tested for Lyme through Kaiser but it was negative. pretty much her doctors have tried to give her pills for her "head" since they could not come up with any other diagnosis. She has all the symptoms of Lyme so we researched further and found a naturopath that sent her lab work to Igenx which is what we are waiting on for the completed test results. If this is the diagnosis where in California would be the best treatment? Or where else outside of Calidornia? what are your thoughts on the clinic in Florida that comes up when you search Lyme treatment?

opugirl
Forum Moderator


Date Joined Nov 2012
Total Posts : 3891
   Posted 12/27/2013 12:11 PM (GMT -6)   
Hi Seeking treatment,

Sorry to hear about your daughter. I also had several 'skin infections' before the proverbial 'poo' hit the fan with my health. As far as the lyme clinics go I would recommend them as a last resort. They are really expensive and if they don't work, you have to re-evaluate what you are left with financially to regain your health.

A lot of drs offer similar services that are way more affordable. There are some LLMD's in CA so hopefully someone will see your thread and chime in here. I might give the ND a try as well. Personally I used herbs, an ND and an LLMD. I spent a decent amount out of pocket BUT I recovered pretty fast (I am 28) and even seeing all of those different drs I still spent way less then what a clinic would have cost me.

~beth
Forum Moderator

July 2007 - Deer tick bite w/ physician confirmed EM Rash - given 10 days of Doxy
October 2012 - My world gets rocked January 2013 - My world turns upside down
March 2013 - Igenex +, start treatment with LLMD, LLND, and herbalist
August 2013- Finished all abx, continuing with herbs and homeopathy, Feeling good!

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 12/27/2013 5:59 PM (GMT -6)   
First of all, I too am very sorry to hear about your daughter. I would go nuts if it had been one of my kids instead of me that was so ill!! And thank you so very much for understanding that we are a bit protective of our docs!

There are a few ways to approach finding a LLMD in your area.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

You can email Stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

I also have some listings in California as well. If you would like to email me (click on my name or the little blue envelope under my name), I'd be happy to share them!

No matter how you find a LLMD, I hope that your daughter has a smooth healing path!
Treatment for Lyme & Bart ended Dec. 2011 - no active symptoms
Treatment for Babesia ended Dec. 2012 - no active symptoms
Healed and loving life!

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 12/27/2013 6:34 PM (GMT -6)   
Would an LLND be ok? According to CA law, she can prescribe regular meds. She's in San Diego.

Margaret
Margaret, 52, Low immune globulin, Lyme, c. diff., complete thyroidectomy, remote breast cancer, IC, Babesiosis, Bartonella, etc.

Synthroid, Cymbalta, OTC allergy, Malarone, Hydroxychloriquine, Acyclovir prn, Imitrex prn, Gabapentin, Temazepam, Lamotrigine, Bystolic, Singulair, IVIG,///Colostrum, Glutamine, Multis, Calcium, D3, B vits, Probiotics, AcetylLCarnitine, Omegas, Iro

CaliLyme
Regular Member


Date Joined Mar 2013
Total Posts : 133
   Posted 12/28/2013 12:01 AM (GMT -6)   
Hi there,
My daughter sees a great llnd in arroyo grande ca. We saw the nd in San Diego. Not the right fit for my daughter. Email me if you want his name. So sorry to hear about your daughter. But know there is hope once you find the right dr for her. We went to the hansa center as well. It definitely helped and was part of her healing path. But we needed local support as well. I really like the nd we see. There is also I md in Thousand Oaks I have heard is good.
This is a great forum. Great group here
I'm so thankful to you all. ;).

Y o g i
Regular Member


Date Joined Apr 2013
Total Posts : 348
   Posted 12/28/2013 11:42 AM (GMT -6)   
Seeking treatment -- have 2 referrals for you. 1 in Malibu (he doesn't know anything about herbs tho) and my LLMD, who accepts I insurance in San Diego. I can send you an email if your email is visable.

Sorry to hear about your daughter but there's lots of hope for healing!

Sarah
In remission (maybe it's gone?!) Since 9/13 according to I Spot Lyme test. Drinking HH tea to finish off Bart. Train Wreck: Oct 2012; cd-57 29. Bart symptms & +4 Lyme 4/13. MTHRF 2 copies. 5 Mths of Mino, Omniceft & Tindamax. Factive for Bart (2 1/2 mths). (serrapeptase 12,000, 2x daily) 2bust cysts. Some herbs, cinnm bark, Vit C, co-Q10, juicing, lemon H2o, yoga, sweating, colonics/cleansing.

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 12/29/2013 7:00 PM (GMT -6)   
Calilyme,

Do you mind telling me what happened with Dr. M., the ND in San Diego? I can't decide whether to stay with her or not.

Margaret
Margaret, 52, Low immune globulin, Lyme, c. diff., complete thyroidectomy, remote breast cancer, IC, Babesiosis, Bartonella, etc.

Synthroid, Cymbalta, OTC allergy, Malarone, Hydroxychloriquine, Acyclovir prn, Imitrex prn, Gabapentin, Temazepam, Lamotrigine, Bystolic, Singulair, IVIG,///Colostrum, Glutamine, Multis, Calcium, D3, B vits, Probiotics, AcetylLCarnitine, Omegas, Iro

boneissues
New Member


Date Joined Aug 2014
Total Posts : 13
   Posted 8/18/2014 4:26 PM (GMT -6)   
I am 24 years old and am located in orange county. I have been let down by several doctors in the area and I have horrible bone pain and aching. They tested me for Lymes disease but it came back negative. I am concerned the doctors aren't taking my symptoms seriously and want to see a specialist. Can anyone here recommend a Lyme's specialist in southern California?

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 8/18/2014 5:13 PM (GMT -6)   
I am seeing someone in the san diego area. I really really like her, although I am in my first 6 mos. of treatment. I believe there are other specialists closer to the LA area but if you don't get a response post again and I can give you my LLMD's contact info.

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; will start abx for lyme in Oct.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotweed.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 8/19/2014 9:16 AM (GMT -6)   
I have the names and contact info for a few LLMD/LLND's in the LA area, boneissues. Just send me an email asking for these and please be sure to include what area you are looking in so that I don't get confused - LOL! Thank you!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

cccmama3000
Regular Member


Date Joined Jul 2014
Total Posts : 256
   Posted 8/19/2014 12:03 PM (GMT -6)   
I just started treatment with a LLMD in the Malibu area - he was the 2nd one I visited. I have heard great things about him and my first visit was very promising. He only uses ABX, so I am also going the Eastern Medicine/Herb route in addition. What I liked about him is he did not Poo-poo that! He was very open and honest and said he doesn't know anything about herbs and stuff but he seemed to know his stuff in regards to Western Medicine and ABX.

turbowonder
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/21/2014 2:52 PM (GMT -6)   
Hi guys I am located in San Diego and am looking for referrals as well. I am willing to drive a pretty good distances and lodge if need be. I have been dealing with the disease for about 4 years with a lot of the curing methods done on my own. I have been doing fairly well but still deal with things. So with that I am ready to see how much better I can get with a professional and their guidance. Also I aware of the clinics outside of CA. I wanted to see if I could find something related to San Diego, LA, SF. Obviously the closer the better. Thanks in advance and feel free to email me.

Rubybug23
New Member


Date Joined May 2015
Total Posts : 4
   Posted 5/30/2015 9:46 PM (GMT -6)   
Hi, new to community as well & also seeking competent Lyme Md "detective" ,as Dr H would say, here in SoCal. So sorry to here that your daughter was infected, I feel your pain. My son was diagnosed with ASD @ 3 years old & we're still fighting that battle. He's now 11 & goes to school that costs more than my college tuition. Can't even begin to tally up our medical expences for him over these last 10 years. Now I'm battling this mysterious illness that feels eerily similar to the exhausting battle that I lost countless times with the medical community, school district, etc... We can't beat ourselves up when dr's treatments fail us & those "close" friends abandon us when we need them most. I read recently “In order to succeed you must fail, so that you know what not to do the next time.” ~ Anthony D’Angelo. Such wise, difficult words to absorb when our hearts are breaking, which is how I felt/ still feel, watching my son & all his struggles. Anyway, I too am searching for a Lyme "detective," here in SoCal, preferably an Md that works with conventional & alternative protocols, if anyone has found a great Lyme Md, would love to hear about who. Hope your daughter is doing well & please share or email me if you found someone to help. Take care
Family suspecting Lyme after last attack left me bedridden last month
Diagnosed with MS 3 years ago, shortly after strange rash, facial palsy, fatigue, joint pain, etc.
2 tiny white spots on brain MRI(Neurologist based MS diagnosis on this)
CSF negative for MS but inconclusive ELISA & Western Blot
misdiagnosis of MS determined by Mayo clinic 2 years ago
countless clinical symptoms of chronic lyme

OCguy
New Member


Date Joined Jun 2015
Total Posts : 1
   Posted 6/24/2015 5:40 PM (GMT -6)   
You may want to look at OCnaturalwellness.com. I noticed during my last appointment with them that they work with people who have Lyme Disease. Might be an option for you if you live near Southern California.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 6/25/2015 2:42 PM (GMT -6)   
The problem with that is that they don't treat complex infections like the ones that occur with Lyme, Bartonella, Babesia, Rock Mountain Spotted Fever, Ehrlichia, Anaplasmosis, and other infections that can be passed from a tick or other insects. These are some of the most complex infections known. That's why we have our own listing of doctors that treat according to ILADS standards.

No offense meant, but while they likely have great success with helping people to detox, they likely have no clue about the real issues with Lyme disease from the little I saw on their website.

thank you for the suggestion though, OCguy.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

beatingbabesium
New Member


Date Joined Dec 2017
Total Posts : 1
   Posted 12/27/2017 3:40 PM (GMT -6)   
The MD in Thousand Oaks is really good, he just found that my daughter has babesia, Dr. G. After years of Kaiser not doing anything for her or wanting to help her he found babesia in her blood. Has her on natural remedies along with high doses of vitamins. Will let you know how she responds to treatment.

Gene

Post Edited By Moderator (Girlie) : 12/27/2017 1:47:29 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/27/2017 3:48 PM (GMT -6)   
Hi Gene - welcome!

I edited your post to change the Dr name to initials only.
We do this for their protection.

What is the treatment? (If you're willing to share)

We encourage new members to read through the info in the thread: "New to Lyme?...Start Here!"
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tymeheals
New Member


Date Joined Oct 2016
Total Posts : 14
   Posted 12/27/2017 11:13 PM (GMT -6)   
If you have a spare $25,000 laying around I would suggest 2 weeks at Infusio Beverley Hills. Claimed success rate of 80-85% which is subject to interpretation (metric used). Stem cells seem to be helping a lot of people and based on their Facebook vlogs there is a lot of new stuff happening at Infusio.
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