Lyme Disease and Bakers Cysts

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Market Hunter
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Date Joined Jan 2014
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   Posted 1/11/2014 8:45 PM (GMT -6)   
So I had Lyme Disease two years ago which did not get treated for about 5-6 Weeks after I was bitten. Fevers up to 104. In the last three months I had a bakers cyst in my right and now in my left knee.....

Thoughts?

Tano
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Date Joined Jan 2014
Total Posts : 370
   Posted 1/11/2014 9:15 PM (GMT -6)   
This is very ironic ...

For 3+ years, I have had what was first thought to be an enlarged lymph node in the preauricular region near my right ear ... So many of my remaining symptoms seem to stem from that ear and jaw area ( the "lymph node" is directly over the jaw hinge )

A month ago, I asked my dentist to feel it because after he made a mouthguard for me, the "lymph node" began fluctuating in size ... My dentist said it is not a lymph node - it is a cyst ..

I have now learned that cysts can develop in area where fluid leaks from a joint ( wrist, knee - and even the jaw )

The frustrating thing is that 3 ENT surgeons say "lymph node" while my lyme doc and dentist say "cyst"

I have been fighting babesia .... and I see that you mentioned having fevers of 104 - fevers like that are indicative of babesia, not necessarily lyme ..

Bartonella can also cause fevers, and is known for granulomas ...

I would say that your baker's cysts ( which are aka as ganglion cysts ) could absolutely be a result of the tick bite - but perhaps, not from lyme, but a babesia or bartonella infection

I am still trying to get answers as to exactly what it is I have, and if it requires surgey, or, if it will go away w/ proper treatment ...

Do you have night sweats ???

Any rashes ???

Market Hunter
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Date Joined Jan 2014
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   Posted 1/11/2014 9:34 PM (GMT -6)   
Sorry for the confusion. My 104 Temps were back when I originally had the tick bite two years ago...I was then treated with antibiotics. Just wondering if the Lyme disease is still lingering inside my body causing these Bakers cysts?

Tano
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Date Joined Jan 2014
Total Posts : 370
   Posted 1/11/2014 10:12 PM (GMT -6)   
Do you have any other symptoms ?? Do your knees hurt ?

From what I understand, these cysts are the result of fluid accumulation or fluid leaking from a joint ...

TICKLEDPINK
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Date Joined Jul 2012
Total Posts : 914
   Posted 1/12/2014 5:12 AM (GMT -6)   
I had Baker's cysters on both knees and still have a tailor's cyst just below my little toe.

Both knees are now back to normal,they drained without any medical intervention but my toe cyst is taking time to drain although it is getting smaller.

My doctor has always been reluctant to do anything about my toe cyst because it has never caused me any discomfort and he is convinced that it's Lyme related and will resolve itself in due course.

I do have Bartonella..........so my guess is that my cysts are directly linked to that.

Tickled

Lymebabe
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   Posted 1/12/2014 8:03 AM (GMT -6)   
My sister had these cysts years ago with a host of other strange symptoms. She was diagnosed with Lyme 2 years ago after many years of suffering. Now that you posted this I wonder if that was a symptom of Lyme!
Tick 11/2011
First symptoms 9/2012
Incapacitated 8/2013
Abx that have not been working and looking for something that will work

Market Hunter
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Date Joined Jan 2014
Total Posts : 4
   Posted 1/12/2014 10:14 AM (GMT -6)   
I find it strange that three months after my first Bakers cyst it shows up in my other knee. They had even scanned both knees when I first had the original cyst. They made no mention that there was a cyst in the second knee...They did however confirm the cyst in my original knee.

Currently my pain is throughout the knee with lots of pressure behind the knee. Flexibility is limited because of the pressure. Calf very tight.

Tick was 11/2011

Symptoms a week later, fever every day to 101, then two weeks after the bite a high fever of 104, muscle weakness, sweating so bad I slept inside a sleeping bag and it was completely soaked by morning...It was soaked as if a 5 gallon bucket of water was poured in (Never sweated that much when I was sick before). This lasted two days....Then I felt better. Then it all repeated itself for another two week cycle of low fever at first and then the high 104 fever and sweats. Then I went to the Doctor. Got antibiotics and never looked back Doctor made a comment that the blood test would always show lyme disease going forward.

Would like to understand this Bartonella & Babesia, can it be treated with antibiotics. Is it something that can linger for years?

Bakers Cysts 10/2013 and current

Tano
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Date Joined Jan 2014
Total Posts : 370
   Posted 1/12/2014 2:53 PM (GMT -6)   
Market Hunter, I am not a doctor, but I have babesia ( confirmed by blood tests )

What you are describing is babesia - the drenching night sweats, the cycles - that is babesia

Babesia is a protozoa parasite - it is very similar to malaria ( it is not a bacteria ) ... Antibiotics are effective for bacteria, but will not help with a parasite like babesia ...

I would definitely seek out a doc who is familiar with tick related infections

I believe most everyone here who is familiar with these conditions would agree that you have all the signs of babesia ...

Market Hunter
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Date Joined Jan 2014
Total Posts : 4
   Posted 1/12/2014 4:17 PM (GMT -6)   
I have not had these symptoms for two years.....After I had my initial antibiotics I was fine. I do not believe I have Babesia...

Cystem
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Date Joined Jan 2018
Total Posts : 9
   Posted 1/4/2018 1:17 PM (GMT -6)   
I have tested positive for Lyme on the Cdn Eliza test and equivocal on the WB and positive on the IGENEX tests (on the right Lyme bands) as well as positive for Bartonella; however in Canada these tests were ruled as false positives, as most Lyme cases are. I knew it was not negative, since I had very severe arthritis and massive exposure to ticks in the past. I too have multiple cysts and ganglion cysts as well -- cysts everywhere and knees so badly damaged I will have to use a walker for life because they don't like to operate on the knees of single women, I think because their recovery is more costly because they don't have anyone to care for them at home. There were three pages of knee damage.

Recently I was scheduled to be operated on for a massive synovial cyst in my spine after developing an extremely extremely severe case of sciatica. They didn't like to touch it because it was so big but a few weeks later it disappeared. I too have Baker's cysts on and off. All of my records pertaining to Lyme disease virtually disappeared from all hospital files and infectious disease files and were no longer found, just a short while after I was told my positive tests were all false. All I know is that millions are probably suffering from Lyme and all of its strange and painful maladies, but few in Canada will ever be diagnosed, especially in Alberta, a province well known for Lyme denial, and one in which half the doctors can't even spell the word, let alone recognize most of its symptoms. As a result, there is generally little or no followup whatsoever for patients who are told they don't have Lyme despite nothing but positive and/or equivocal tests. They will deny, deny, deny.

Post Edited (Cystem) : 1/4/2018 12:32:39 PM (GMT-7)


Missouri
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Date Joined Sep 2017
Total Posts : 336
   Posted 1/4/2018 1:26 PM (GMT -6)   
Welcome Cystem. Thank you for posting. Ridiculous how mainstream medicine wants to bury its head regarding tick borne illness. There are several Canadians here on our board that could help you if needed.

Rikky1
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Date Joined Jun 2015
Total Posts : 2860
   Posted 1/4/2018 1:35 PM (GMT -6)   
Babesia and/or Bartonella can "come out of hiding" at any time in your life. My daughter is now getting emerging symptoms from Babesia after showing nothing for 4 years after initial tick bite. No one knows why some emerge years later or not at all but the symptoms are what we treat for.

A good test to take is a FISH or PCR test that will show the DNA/RNA of the organism and confirm whether you have it. Note they are always accurate as the blood they draw from you might not have the organism in it but I've found these types of tests work pretty well. I've done the Igenex one for me and my family.

I too thought I had lymph node swelling behind my right knee for years until my new LLMD said its a bakers cyst. Never had anything like this pre-infection but its still here years later. I also have confirmed babesia duncani so there another connection of this type of cyst to this parasite. Weird.

Cystem
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Date Joined Jan 2018
Total Posts : 9
   Posted 1/4/2018 1:42 PM (GMT -6)   
Thanks Missouri. Yes, if you look up Lyme disease in Alberta there are more articles written about its non existence in this province and its denial than anything else. But like many others, I have received much of my therapy from outside the medical field since it seems that the only thing available through the medical field these days are flu shots and other corporate-profit items. Not blaming doctors here, but rather insurance companies, obviously.

Since almost everyone in Alberta is insured by Alberta Blue Cross and there are basically no competitors, those types of things probably don't help much either. At any rate, I'm not sure if intravenous for months would be beneficial anyway and think that the best a Lyme patient can do is avoid sugars, carbs, and alcohol, get plenty of rest and exercise, and eat a diet as healthy as possible. In fact, that will probably cure most diseases including cancers. Have so far managed to even keep that at bay for 11 years with no chemo or radiation (just segmental mastectomy only). Sure, I get swollen lymph glands under the arm now and then, but then I have to take a few added health measures to make them go down again. I'm literally filled with internal tumours and cysts from head to toe and have been for many years, and can still get around fine, so if I can do it, I guess others can too. Don't expect to die for a number of years yet.

By now I no longer fear disease too much, figuring everyone has to die of "SOMETHING" anyway so these things to me are no more frightening than diabetes or heart disease.

Post Edited (Cystem) : 1/4/2018 12:52:58 PM (GMT-7)


Rikky1
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Date Joined Jun 2015
Total Posts : 2860
   Posted 1/4/2018 1:51 PM (GMT -6)   
>>the best a Lyme patient can do is avoid sugars, carbs, and alcohol, get plenty of rest and exercise, and eat a diet as healthy as possible. In fact, that will probably cure most diseases including cancers

Nice thought and definitely a must when sick with these diseases but alas it will not keep them at bay for many. The co-infections like Babesia and Bartonella are way more nasty than Lyme for most it seems in my experiences. Then there's the unidentified/unknown parasites which can keep you sick.

Your condition seems mild enough (for lack of a better term) where you can have that attitude towards it but for those where the pain and suffering is impactful enough unfortunately we're forced to treat.

Cystem
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/4/2018 2:16 PM (GMT -6)   
I have good pills for spasms (Cogentin - best on the market because you don't have to take it all the time and it reacts really quickly when needed) and also Cabergoline for keeping prolactin down from a pituitary adenoma. Because I had high prolactin even without eating any sugar at all, I came to believe that many people actually can't handle sugar at all! And do you know that about one in six people today has a pituitary tumour and doesn't know it? It's easy to test for with just a simple prolactin test.

Also have thyroid nodules and such, and multiple pre cancerous skin lesions, although most are fortunately covered. None of my x-rays or MRIs are normal. Even have lung scarring (don't smoke). Do understand the terribly painful severity of Lyme type spasms, however which can go on for hours non stop, and have been hospitalized a few times for sudden inability to walk etc. Have also been in bed with sciatica sometimes that was so severe I had to stay in bed without moving for 48 hour periods before I could walk painfully for five or so, and then another 48, etc., with with only a bottle of water to drink and a bucket by the bed (no food). One hospital stay was for 6 weeks, and I do have a few devices to get around with, but I always somehow recover enough to still join friends for less vigourous activities, and am getting more energy as well as a result of other forms of treatment such as accupuncture and medicines, anti-cancer supplements, anti toxin supplements, etc. That part is rather expensive.

My blood is definitely off in a number of places too but somehow I just get up and go again each time. However, I am luckier than many because I can rest as often as I need to and that is essential for those who are sick. Feel very sorry for those who can't. Also use self-hypnosis healing tapes and many similar types of tapes.

Am recently trying vibration therapy as well even though that can be dangerous for those with tumours, but it's amazing in assisting with spinal pain and walking. Those stand up machines are really powerful, like a man using a machine to dig into cement, but they seem to especially assist with circulation and better ability to walk, which is what most sick people need I think. I did bleed a couple of times when I first started but don't anymore. I do think they help a lot with regard to knee, spinal, walking, and balancing issues, and the price isn't too bad either. You may feel like you're not getting your money's worth because you only use the machines about 3 times a week and have to drive all the way there for 10 minutes each time, but they are actually quite effective I believe, because they can shake up all of those nearly dead parts of your body that haven't had any movement inside for years. I would recommend them to anyone with walking issues especially.

Post Edited (Cystem) : 1/4/2018 1:20:06 PM (GMT-7)


Girlie
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Date Joined May 2014
Total Posts : 32619
   Posted 1/4/2018 2:34 PM (GMT -6)   
Hi Cystem - welcome!

I am in BC, Canada.
I’m not at home so have to keep this brief.

There are LLND’s in Alberta.
There is also a LL ID dr in Alberta. Unfortunately he has a very long wait list and last I heard he’s not adding any more names.

People with Lyme in Alberta who want to go the antibiotic route usually go to the U.S. or to BC for treatment.
There are a few llmd’s in Seattle as well as Vancouver area and Victoria.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 1/4/2018 2:36 PM (GMT -6)   
Re: bakers cysts - i had trouble doing a squat because of them, but they are almost gone now with treatment.
Still a little bit of swelling that hasn’t budged.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Cystem
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/4/2018 3:20 PM (GMT -6)   
I think it's very common for Lyme patients to be flooded with cysts and tumours, whether Bakers cysts that come and go, synovial spinal cysts that do the same, and even large lumps under your arm that come and go, which doctors will be convinced are caused by metastatic cancer, especially if they diagnosed you with breast cancer before (which I also somehow didn't believe even though they did a segmental mastectomy, so I refused chemo and raidation). They told me that a few years ago too and wanted to tear out my lymph nodes but I wouldn't let them.

Also toe cysts are common. I've had them all. But one person mentioned his doctor didn't want to do anything about his toe cyst.

That's probably a good suggestion because I had one removed and it's true that even podiatrists don't like to remove those because there are a lot of nerves in the toe, so after mine was removed I did have problems bending the toe and ended up with a hammer toe. So although the cyst may be green or purple and be quite ugly looking, toe cysts indeed might be better being left alone unless they cause a lot of pain.

Post Edited (Cystem) : 1/4/2018 2:23:59 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 1/4/2018 7:57 PM (GMT -6)   
Cystem - are you looking for a Lyme Literate Dr. to treat you?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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