Our daughter's PANS reactions included Tourette's-like motor and vocal ticcing, as well as other symptoms. For her bartonella was the culprit when it came to ticcing.
Here is a copy of my signature from the ACN forum which pretty much explains her time-line:
DD12 - Born 2001. Loss of speech/fine motor ability 2 weeks after 15 month MMR.
2004 - Dx ADHD, sensory disorder (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.
2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour
, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.
2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.
Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, fatigue, nightly fever.
June 2011 - Igenex PCR positive bartonella, Negative lyme (IND IgM kDa 41; IND IgG kDa 93, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.
Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.
April 2013 - Weaned from abx treatment. Continue with Buhner herbs, ByronWhite, methylation/detox protocols, Terry Wahls gf/cf/sf diet. Minimizing EMF exposure.
Sept 2013 - CD57 45.
Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Slight pain herxing remains with changes in herbal protocols.
Nov 2013 - Improvement of executive function/ADD to 98% with addition of Buhner herbal protozoan treatment.
Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations at this time.
Post Edited (rowingmom) : 1/23/2014 10:20:42 AM (GMT-7)