Yes, I went to a Neuro in my search, he diagnosed me (verbally only) with Bell's Palsy due to Lyme - then reneged when I asked during a different appt later on, saying that he didn't say that.
Most of the other doc's that I saw in my search told me MS - even had one yell at me in his office because I wouldn't start MS meds that day! But I felt that I had too many symptoms that still weren't being accounted for. How many people will come down with 3 or 4 diseases all at the same time anyway????
I had (?) white spots on my brain, but I don't remember if there were any on my brain stem. I even have the pictures of my brain on a CD!! LOL!
I was actually thinking I had M.E. ( myalgic encephalomyelitis), which is now considered Chronic Fatigue -although they really are a bit different. It was someone on a forum- much like this one - that suggested that I look into Lyme disease.
Yep, even with a diagnosis from a LLMD, there wasn't a doc any where in my area that would even let me in the door. I was turned away by every single doc in my area and had to drive south 2 hours to find a doc that would even consider examining me. It was good though, as she became my doc and helped me heal!!
Docs that don't want to see the truth will use all kinds of excuses to not treat or acknowledge the test results - from saying that it's a false positive, saying that the lab is "rigged" in some way to show more positives than there really are, to only agreeing to give a person a small daily dose of an abx for only a short time to 'quiet us'. Don't fall for this!!
There have been quite a few LLMD's that have had to have a "monitor" in their office - where the doc has had to have every treatment decision they make reviewed first - or have actually lost not only their practice but their license to practice due to insurance companies 'turning them in' for prescribing "inappropriate" treatments by the IDSA standards. So the doc's chose to not take insurance so they could continue to treat more patients. Of course there are some doc's that take advantage of this and charge truly outrageous prices -but that's why everyone should 'comparison shop' for even their Lyme doc.
Treatment for Lyme & Bart ended Dec. 2011 - no active symptoms
Treatment for Babesia ended Dec. 2012 - no active symptoms
Healed and loving life!
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.