The first time I noticed dark circles, was the day I/we saw the first blinking motor tic. That afternoon he was extremely fatigued and said his tummy hurt, "bad"; he looked so worn out.
It seems like the dark circles are always there right now, but somedays are darker than others, they've been pretty consistently there since mid Nov., close to the time I noticed he was so often telling me something "hurt"
and the first things he complained about
that hurt, were his feet and big toe. He'd say "mommy, my foot hurts" at random times. One day on the way to Target, he was in the back seat in his booster seat and he said "mommy, my big toe hurts, really bad".
In mid-November (about
two and a half weeks into the blinking, anxiety, and tummy aches) I remember standing in my kitchen, he was sitting on the floor playing, then held his foot, and said "my foot hurt" and I said to myself, "why are his feet always hurting?" and then several days later, I was aware he was complaining about
his leg, or his arm sometimes too. (then onto knees, shoulders, ankles, elbows, throughout the next weeks)
One thing that caught my attention was on a lyme symptom list on Dr. J website (pediatric lyme dr.), and it said "sporadic fatigue". It said "the child may be one minute running around wildly at the park", and then later unusually fatigued, listless, etc. I thought "exactly!" . It said how the child isn't always lying on the couch sick, but having symptoms that come and go. (The farther along it's gotten the more fatigue I see, and heard more complaints .)
He doesn't look sick, except for when the dark circles and fatigue are bad.
Anyway, like your daughter, my son had rarely gotten sick. This is the first time he's ever been on antibiotics (and he's four). So, when he was telling me everyday or every other day that his head hurt, or his tummy hurt (and that's been one of the most common complaints of his) I knew something was off.
I think it's a good thing to have her tested. I would say Igenex for sure if the other is negative. I read an article recently that said even the College of American Pathology has said that the ELISA test isn't sensitive (or good) enough.
I think I mentioned earlier, that my son was negative even on Igenex, but he was almost positive. It was 41++ and 39 IND (and I understand they consider IND as band present, just not at calibrated strength to call a positive).
something reassuring I've read several times, and heard on a youtube video of an interview with Dr. Steven H
(question to anyone reading who knows: can we say names of Dr.s who have written books and done interviews, and who themselves make it public that they treat lyme?)
anyway, he said that children most often recover from lyme if properly treated. I'm believing that.
so, if that's what you're dealing with with her, you can hang on to that positive statement too.
Post Edited (stacestar) : 2/27/2014 6:53:55 PM (GMT-7)