hello rowingmom, do you have your own blog I could read all your post about
how you help your girl to overcome all the issues? My son has autism with speech delay. He has regression from MMR and menb injection. We didn't do any virsus panel test but i believe he is a viral kid. He had progress with Valtrex in last year but we stopped after 2 month because his kidney couldn't handle it.
I read on autismweb forum some parents recommend Dr Buhner's protocol and I bought his books to read.
But still no idea where to start from. One of the forum member is highly recommend to read all your post and he got idea from you and his child is almost recovery from autism.
many thanks for your help.
1. Yes, Buhner says that his protocols can be used concurrently with abx. We used Japanese knotweed for both body and brain inflammation (produced by die-off) throughout our daughter's 2 years of abx treatment. And as soon as she weaned from abx I started the rest of the bartonella protocol (except l-arginine, as I can't be sure we are not dealing with viral infections) as well.
2. We do Buhner's herbs on our own. Our LLMD is pretty herb illiteriate, but gave me the OK to try them. She (the LLMD) has been pretty impressed with our results, especially once I started dosing WoodLandEssence's CSA (cryptolepis/sida/alchornea) - high doses of which produced babesia die-off symptoms in our daughter. Buhner discusses cryptolepis in his Herbal Antivirals book, and also recommends it for babesia on his website.
Our daughter had never tested positive for babesia, but I have discovered that many of her ADD/executive function difficulties are probably due to some undiagnosed protozoan/viral infection and she has responded superbly to CSA in addition to Buhner's bartonella protocol.
If you are not comfortable in tackling this on you own, Buhner's associate, Julie McIntyre is available for consults and will give you protocol suggestions.
It will be well worth your while to read his Lyme Coinfections:Mycoplasma and Bartonella book, as well as the Herbal Antiviral book. Most of the herbs suggested in these books work synergistically, and taken together they have much more of an impact than their simple additive effects. Buhner talks about this. He also teaches you various methods of preparing the herbs and the best places to source them.
Before I contacted Julie I read through the Coinfections book and got an idea of how and why the herbs work. These books are pretty big and full of paradigm changing information on how our bodies and the infections work as an ecosystem. If the ecosystem is out of balance we are sick, if in balance we have remission of symptoms.
When we first started using Japanese knotweed, I got it in SourceNaturals Resveratrol (made from knotweed, not grape skins) tablets from iHerb. After a while this became expensive (also too many fillers) and so we switched to the powdered organic herb from 1stChineseHerbs (as suggested in the Coinfections book). I prepare it as a decoction (tea) which we use 3x daily. 1 lb of powdered herb is $15 and will last approx 8 months, so a lot cheaper.
Just because herbs are natural doesn't mean they won't produce significant die-off. Both my daughter and I have yet to reach Buhner's recommended dosages for any of the herbs, but Julie said this was fine. That you don't really want to induce a herxheimer reaction while healing. Lower dosages over longer periods are just as effective.