constant crying?

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Louise74
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Date Joined Mar 2014
Total Posts : 1035
   Posted 4/5/2014 9:33 AM (GMT -6)   
ive been on doxy for 2 weeks and suspected to have some intense bart symptoms.  so I burst into tears like all day.  I cant stop.  it totally freaks my kids out.
 
is this the doxy, the bart? or both??  has anyone gone through this and will it pass with further treatment? cry

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 4/5/2014 10:57 AM (GMT -6)   
Hi Louise,
Your body is going through a lot right now, it most likely is all the toxins being released as you start to heal.

There are some natural products that can help, like Rescue Remedy and SAM-e (both recommended by my LLMD and I am not selling these).

It will pass with further treatment, but it may come back from time to time. Take it as a sign that you need to rest, detox and take the pressure off yourself.

Hope you feel better soon.
Long inadequately treated infection, treatment and then re-infection. Doing quite well but still being treated. In short, getting well.

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 4/5/2014 6:35 PM (GMT -6)   
So sorry Louise,

Just sit down with your kids, and patiently explain what's going on with your body. Being honest is best, isn't it?

Milk Thistle is good, and other detox methods.

Let yourself cry, and tell yourself, "Ok, now I'm going to be crying for awhile."

Margaret
HELLO!! :) :)

Margaret, 53, Lyme, relapsing remitting c. diff., complete thyroidectomy, remote breast cancer, Interstitial Cystitis, Babs, Bart, Fibromylagia, Immuneglobulin Deficiency, depression, asthma and allergies, migraines, myoclonous and remote seizures, orthostatic hypotension and dysautonomia

Medication, herbs, vitamins, probiotics, Cowden protocol for now; might change.

Chapelle
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Date Joined Feb 2014
Total Posts : 2604
   Posted 4/5/2014 6:36 PM (GMT -6)   
It is not the doxy, for sure. Back in November I was crying everyday bc of the anxiety due to the Lyme. Back in January I was crying every day bc I didn't know what was wrong with me. Then when I figured out it was Lyme, I was crying every day bc I was afraid I wouldn't beat it!! That part, for me, is over, thank goodness!

If you are just crying and you don't know why, then it's the Lyme or Bart. It will pass no matter what the reason is, just do your best not to let your kids see you upset!

I do hope it passes for you soon!! What dose of doxy are you currently on? Have you herxed yet?

Maine76
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Date Joined Jan 2014
Total Posts : 993
   Posted 4/5/2014 6:39 PM (GMT -6)   
It's ik for kids to see you upset as long as you explain, they know when we lie. They will know if your upset even if you try to hide it. I try to be very honest with my kids but also reassure them that it's ok. O
Excuse typos and or spelling and grammatical errors. I try to proofread, it's hard right now. Believed to be infected at least 28 yrs, dx 2012. Kiddos with congenital lyme. I am a nurse but a sick stay at home mom currently.

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/5/2014 6:49 PM (GMT -6)   
I am really good at hiding it - I prefer to, bc my kids generally happy go lucky, and I would rather them not be worried. I guess it depends on each individual.
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

lymerunner
Regular Member


Date Joined Aug 2013
Total Posts : 353
   Posted 4/5/2014 7:05 PM (GMT -6)   
Louise74, im sorry to hear about the awful crying spells, i have them from time to time too. I dont have bart, just lyme. I will tell you that every so often i have these spells for a day or two and after they pass my symptoms overall get better! Very strange! I have been on many different abx over the past 15 months, so it must be a process my body goes through as it is healing, so this might be a very positive thing for you as well. I hope they pass soon, so you can feel happier again! smilewinkgrin

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/5/2014 7:07 PM (GMT -6)   
lymerunner, if you only have lyme, why have you been on various antibiotics?
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

Maine76
Veteran Member


Date Joined Jan 2014
Total Posts : 993
   Posted 4/5/2014 7:21 PM (GMT -6)   
Chapelle different antibiotics are meant to target the different forms of lyme. Also LLMDs generally switch it up so they don't become resistant, they are smart bugs. There's not one ILADS trained LLMD I know that would use just single antibiotic therapy, and I've come to know a few.

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/5/2014 8:02 PM (GMT -6)   
oh, I am aware of this, but my LLMD is having me use herbal cyst busters instead. she said she has had tremendous success rates with this, along with boosting the immune system to help fight the battle too.
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

Louise74
Veteran Member


Date Joined Mar 2014
Total Posts : 1035
   Posted 4/5/2014 8:02 PM (GMT -6)   
Thanks, just good to know it's not just me being overly emotional. Maybe crying is a weirdo herx for me as well. Doxy 100 3x per day to start. I'm sure I'll ramp to more meds at my next appt..

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/5/2014 8:04 PM (GMT -6)   
besides, the cystbusters are very damaging to the body, and metronidazolefor example, is known to cause cancer in mice.
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

LymePickle
Veteran Member


Date Joined Mar 2014
Total Posts : 2132
   Posted 4/5/2014 10:56 PM (GMT -6)   
Chapelle you seem to be doing well with your natural cyst busters. My tinidazole is yes, I get the vibe it's toxic. It smells and tastes so bitter even through the capsule i can taste it's bitterness. Apparent mechanism of action on Lyme - destabilizing it's DNA. Lol I wonder what that does to human DNA. Or if there is an effect. Also tinidazole does have a secondary action of breaking apart biofilms though.

The only thing I question about the grapefruit seed extract is tissue penetration, and Lyme is something that gets deep into tissues. I want something that gets into the joints, brain, prostate for me is another difficult location of medication penetration.

Has your naturopath had any relapses with this grapefruit seed extract/teasel natural cyst busters?
Caught Lyme, Bartonella, and Mycoplasma Pneumonia from a friends tear in an unlucky casual contact.
IND 31, IND 39, ++ for 41, and + for 58. Indicating an acute exposure.
Treating with Minocycline (month 1), then added in Banderol & Samento(month 2), then added in Rifampin(month 3), then switched the Rifampin to Septra(sulfa drug)/tinidazole (month 4).
Currently in my 5th month of illness

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/6/2014 5:49 AM (GMT -6)   
not that I know of - but if you remember I mentioned that I am taking teasel root extract too - that stuff gets deep, I think. I was herxing just on that stuff alone in the beginning

believe me, I am very aware of all of the treatments, and want to make sure I don't walk away from this with the bacteria ready to attack again. I am very concerned, bc I have a chance to beat this and don't want to mess it up. I trust my Dr, but we will see what happens when I see her next, in about a week and a half. I am at 95% now, but this last bit just doesn't want to leave me. My husband said I will wake up one morning and feel totally fine. I am not so sure just yet. I actually almost forgot to take my doxy yesterday morning bc I am feeling almost normal, which is great, but I still have muscle twitches and every morning I wake up I am extremely achy and stiff, but all of that seems to go away during the day. I don't know if that's left over inflammation? or if its still the Lyme. So worrysome!!
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

MarieLS
Forum Moderator


Date Joined Dec 2012
Total Posts : 2690
   Posted 4/6/2014 9:33 AM (GMT -6)   
Hi Louise,

I have the crying spells... In my case it is definitely the Bart, caused by die-off or a flare, it depends.
It can be very overwhelming... like nothing you ever felt before. I have developped the reaction of making an immediate link between the crying and sudden overwhelming depression and this infection, so I don't loose my mind...

I have felt one thing that can give me immediate relief when I feel I'm loosing it. Coffee enemas. I do them and my head clears almost immediatly, it feels like the heavyness just goes into thin air.
You could give that a try when it's really overwhelming you.

If you need more info on coffee enemas, let me know, I'll come back and post them.

Also, try to detox as much as possible, and sleep a lot.
The Bartonella symptoms are very hard to deal with... I totally understand you.

I am with Margaret, I would advice you to sit together with your children and explain them. Children feel it when you are holding information from them, it can worry them even more. It might bring you even closer.

Good luck, and take care,
MarieLS
Lyme/Bartonella/Yersinia/Chlamydia Pn. Sick for +/- 20 years (34 now).
Started treatment August 2012 with 15 months of abx - now on a modified Cowden Protocol since December 2013. Leaky gut, heavy metals, EBV, XMRV, erythema nodosum, Hodgkin's Lymphoma at 15, Lyme arthritis, Neurolyme, food allergies/intolerances, histamine/chemical intolerance

living-free
Regular Member


Date Joined Oct 2013
Total Posts : 211
   Posted 4/6/2014 1:32 PM (GMT -6)   
Hugs, Louise.

My hard core die off caused tears of fear, anger and hopelessness. I was frustrated with my body and hated the monster that had invaded my brain. But I am here to tell you there is hope. It does get better. Once I quit fighting the process and started accepting what was happening it helped. And like MarieLS said, making the connection between things are are happening helps keep you sane. This forum helps beyond words. So I would encourage you to definitely stay connected here. smilewinkgrin

I found it better to be open with my kiddos. Yes, they were scared....but, we have learned to work through a lot as a family. It has increased their compassion and their faith. They have learned to talk about their own fears and found out it's okay to cry and be afraid because they know, as a family, we can get through anything....together. It has also helped us to celebrate the great times of overcoming this disease. Don't overlook the those moments. They are truly moments to cherish and doing it together as a family is awesome.

You know your kids better than anyone. You know if it's best to tell them or not. I wanted my kids to know for several reasons, the main one being that what was happening with mom with not their fault. Me suddenly crying or being angry, even though it could seem directed at them, was truly not because of them, but because of what my body was going through.

I will pray peace for you. Keep breathing and always know you are loved. <3

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2604
   Posted 4/6/2014 5:54 PM (GMT -6)   
I just wanted to clarify what I said about hiding stuff from my kids - they all know I have lyme, and they have it too - we have even changed the entire family diet around! I just "hide" getting upset in front of them, that's all. As everyone said - it depends on each individual.
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014
Went to 5 Drs who gave ridiculous diagnoses -
February 2014- Clinical Self Diagnosis (lyme test was negative)
started doxy February 8th 2014 (convinced a walk in clinic dr to write Rx)
Plan to beat this!!!!

living-free
Regular Member


Date Joined Oct 2013
Total Posts : 211
   Posted 4/8/2014 6:39 AM (GMT -6)   
Oh Chappelle.....I totally get that. When my mood became a roller coaster I would make a face on the dry erase board in our kitchen to let my family know how I was doing. I scary face meant, if mom was in her room it was probably best to let her be. HAHAHA!!!!!!!!! There were times I had to leave, just because I didn't want to explode on anyone. One member on hear and told how she went out and chopped wood. I loved it!! You do what it takes. :)
Life is for living and I'm living it free.

Gbryan
Regular Member


Date Joined Feb 2016
Total Posts : 32
   Posted 4/19/2018 10:56 AM (GMT -6)   
So what can I do about the crying jags. I think we are getting the lyme. Could this be bartonella? How do I test for it?
In the meantime the crying is a nightmare and dibilitating. Not only frightens me, but also my son. Please help.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1662
   Posted 4/19/2018 2:42 PM (GMT -6)   
Gbryan said...
So what can I do about the crying jags. I think we are getting the lyme. Could this be bartonella? How do I test for it?
In the meantime the crying is a nightmare and dibilitating. Not only frightens me, but also my son. Please help.


Yes it could be bartonella. If by testing, you mean labs, then I would test with standard labs first if you have insurance. You might get lucky. The best specialty lab for bartonella is Galaxy Diagnostics. Some have gotten positives on bart with DNA Connexions. I tested with them but did not test positive for bart even though I have classic bart symptoms.

If you are doing herbs or are willing, get some houttuynia or IHA formula from woodlandessence and take some and see what symptoms it brings out, if any. Costs about $13.

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 544
   Posted 4/19/2018 2:53 PM (GMT -6)   
It can be a herx... i have a lot of anxiety, panick attacks Tec... with abx...

Gbryan
Regular Member


Date Joined Feb 2016
Total Posts : 32
   Posted 4/20/2018 8:35 AM (GMT -6)   
If it is herxing, then I am herxing all the time. I h0ave had bart symptoms come out with using Houttuynia. But thought that was herxing. I am on Cowden protocol which covers LD and its co infections.... but if its Baet want to concentrate on getting that. I too had negative bart test via DNA Connexions. I bought Samsara Tick Recovery. It has all the herbs recommended for bart. Trying to decide whether to take,along with Cowden ( i am not at full dose of Cowden...it is very strong). Guess I will call my llmd.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9728
   Posted 4/20/2018 8:54 AM (GMT -6)   
I went to the doctor because I thought I had depression since I was crying a lot. She told me that it takes a lot out of you emotionally when you are sick for a longer length of time than just a cold. On top of that she said that not having a timeline that includes a cure is mentally frustrating.

She said she would give me some pills, if I wanted and I took the prescription note and set it on my desk. I just muddled through lyme and finally shredded the script.

I did do many other relaxing techniques. Yoga and tai chi. I would spend at least 20 minutes a day in the sun. I did Kava root tea which was my favorite for taking the edge off.

Hope this is helpful.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1662
   Posted 4/20/2018 8:55 AM (GMT -6)   
Gbryan said...
If it is herxing, then I am herxing all the time. I h0ave had bart symptoms come out with using Houttuynia. But thought that was herxing. I am on Cowden protocol which covers LD and its co infections.... but if its Baet want to concentrate on getting that. I too had negative bart test via DNA Connexions. I bought Samsara Tick Recovery. It has all the herbs recommended for bart. Trying to decide whether to take,along with Cowden ( i am not at full dose of Cowden...it is very strong). Guess I will call my llmd.


Sounds like you're taking higher doses than your body can handle. Try reducing your dosages and increasing your detoxing.

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 374
   Posted 4/24/2018 1:04 AM (GMT -6)   
Have you had your hormones and thyroid levels checked ?
Lyme is constantly wearing them out.

I start the crying at commercials and I know it’s time to go give blood.
Losing hair in the shower falls happens with it.

Thyroid, estrogen and testosterone just keep tanking on me.

I hope you find the answer and feel better soon.

VCL
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company
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