I feel obliged to jump into this discussion, since I had cancer and got chemo (and radiation) when I was 15,5yo.
I feel it is very different and not very different. Some will have to do with the fact I was in better condition when I had the cancer. Since then, I have been going downhill because of the infections.
The similarities: the nausea, flu-like feeling, everything hurts, the exhaustion. But you know it is going to happen, how long a side effect will last. And you know most of the side effects, although there were some unexpected severe ones.
The thing with LD is that you don't know when it's going to get better. With chemo you know almost right away if there is a result (tumors stop growing and then shrink, it is very measurable) or when there is no good prognosis cause the chemo seems to do nothing to the tumors. With LD you can't predict a lot, in my case, the herxes last for ever, the light at the end of the tunnel is not somewhere at a fixed distance. There are a lot of unexpected side effects.
Social consequences: the same. With the cancer, you get attention when it's just new, it's sensational!!! It's even ridiculous how everyone jumps on you, people that ignored you for years are suddenly pretending to be your best friend. But very soon after that there was no interest anymore, I lost a lot of friends, all, except for 1, and she's still hanging around now, I love her. Some people were even envious. Some backed off because they thought it was contageous (I am not joking!).
Same thing is happening again with LD, less attention in the beginning though, that is the only difference.
I always get irritated when people say that cancer patients get more attention. In terms of research and medical support, yes, but in terms of social support, for me it was a total no when I was having cancer. I'm experiencing the same exact thing now. Besides that, it is not right to compare 2 totally different diseases. Although I understand your question Mystery, cause your talking about poisoning the body, I don't think your question was wrong.
Jackblack, I think you can not speak for another person saying that her chemo was a walk in the park, no chemo is a walk in the park, not even if you compare it to LD treatment, cause it poisons your system in a very deep way, I know a lot of people who suffer life long consequences from undergoing chemo (I have some permanent damage myself). Everyone handles treatment in different ways. Some people like to show their agony, their suffering, others don't, are very private about it, cause it makes them feel vulnerable to show how they feel. I am like that with LD (except on this forum), and I was like that with cancer.
Mystery1, you're going through a hard time. If you feel that your body needs a pause, it is best to tell your dr, talk about it with him. I took some pauses when I was on abx. It's important to listen to what your body is telling you.
Lyme/Bartonella/Yersinia/Chlamydia Pn. Sick for +/- 20 years (34 now).
Started treatment August 2012 with 15 months of abx - now on a modified Cowden Protocol since December 2013. Leaky gut, heavy metals, EBV, XMRV, erythema nodosum, Hodgkin's Lymphoma at 15, Lyme arthritis, Neurolyme, food allergies/intolerances, histamine/chemical intolerance
Post Edited (MarieLS) : 4/25/2014 2:20:48 AM (GMT-6)