Posted 5/27/2014 11:53 AM (GMT -7)
Hello everyone, I have been sick for about 4 years...but not so sick it's completely disrupted my life. I have been going to the same doctor all that time, who has run numerous tests and all came back normal. My biggest problems were anxiety, heart palpitations, unexplained reactive hypoglycemia, massive hair loss lost a third of my hair all over, not in any one area)...literally clumps falling out in shower at 27 years old. My thyroid a been tested more times then I can count, always normal. A echo of my heart was mostly normal at the time showing regurgitation of the tricuspid valve which the doctor said is common. A few years ago, my doctor did test me for lyme...oddly enough, she told me that it was a past infection and not the cause of my problems. I trusted her. So we continued looking for answers. She said I was too stressed and needed Xanax for my anxiety.i never took it, because honestly I was afraid too...my anxiety worked like that.
Over the past month, I became VERY sick...to the point I really thought I was dying, and I still wonder that right now. It started as complete brain Fog..everything I would pick up I'd drop...I'd walk into walls...stare off into space. Couldn't concentrate... Then I started getting body aches everywhere....and I have blotchy molted skin everywhere. I have had a fever(around 99.8-100.1) for over a month which for me I consider a fever since normally my temp is very low.Up until these things started happening I never put two and two together with the lyme. Well I don't know if it was the brain fog or what, but I remembered pulling a tick off the back of my head sometime ago..honestly don't know if it was a month or two months or what. I remember that I didn't think it had latched on because I just scratched my head and it came off onto the bathroom counter, yuck I know. it was very small tick, which I now know is very bad.Well recently I was int he shower and felt a whole in my head whee the tick was. I showed the doctor but she didn't think it was that big of a deal. Since I have chickens she wanted to test me for histoplasmosis, but said oh I can give you ten days of doxycyline to be safe. She didn't even examine me,,didn't listen to my heart or anything.
After starting the doxy some of my symptoms got better, though some new ones have appeared like facial swelling around my lips, on the inside corners of my mouth. I also have a blocked saliva Dylan's on my bottom inner lip. My fever seems to come and go now. I am so scared..,I have an appt with a new doctor but it's not until mid June. I am so afraid of dying and leaving my daughter behind..,she's only 8 and deserves to have a mother who is not sick all the time. I have no family around and my marriage is broken...his ad thinks it's in my head. We have lived in separated ok s for over a year. He is miserable himself and in no position to take care of our daughter of something should happen to me. The last I heard from my doctor she was sending me to infectious disease doctor but didn't even return my call last week to give me resorts of bloodwork. The girl I. The office would not tell me on the phone and said she had to call back...that's as 5 days ago now. I went in Saturday for chest and abdomen ct. The abdomen was from my kidney doctor as I had a kidney stone blockage and cystoscope to remove it a few months ago and I have had flank pain again but this time it does t feel like a kidney stone, it felt more up under my ribs from front to back on left side. That seems better the last few days. The chest CT was because of the chest heaviness and to check for infection. Also the nodes in my neck have been swollen and the one on the left is painful. I have had a lump in my arm pit for a couple years which some,times get painful.. They did an ultrasound last year in it ands aid it was nothing...I thought maybe it was from a blocked mammary gland, but now I wonder of it's a lymph node. The last time the doctor felt it she said it was nothing.
I know this is a lot of info...I am just scared and need help and don't know where to go...I am so afraid if dying and leaving my daughter behind. I am not prepared for that, financially...emotionally. I am 31 one years old now and the last time I even remember being happy was sometime 4 years ago. I feel so bad for my daughter she deserves so much more then this. I am in Indiana by the way(northwest Indiana michigan city area, an hour from Chicago). If anyone knows a doctor who can help me I would appreciate it.if you read this whole tuning, thank you.