I was beaten up and so very ill. When the doctors I saw over 5 years (you are right, I made a mistake, it was at least 10 doctors I saw a year), I walked out (hobbled out) on several doctors because they tried to make me feel worse then I already was feeling. But that's me. I couldn't walk, was using crutches but I was not going to take any crap from any doctor because they had a degree.
I'll tell you a story: When I was a very young girl I went to a dentist around the corner from where I lived and the dentist charged my Mother for 4 cavities when I knew he only worked on one. Ever since then I was suspicious of doctors which carried on into my adult life. I always asked questions and if a doctor became defensive, then I didn't want to see them anymore.
Another story is when a car hit me in my legs when I was 17 while crossing a street and I was supposed to die that night. I was out of the hospital 1 week later and the doctors called me a miracle case. Yes, I had over 10 operations afterward due to all the damage that was done. One doctor who was working on my broken jaw (I was wired up for 6 weeks) was horrible to me and I found out years later he lost his medical license due to his horrible bedside manner.
I have so many stories but that's enough for now. I guess my experience as a young adult affected my outlook as an older adult.
I don't know where my fight comes from, but it's there. I don't question it and call it a gift.
Again, we hire a doctor to help us and if they are not doing their job I just can't see paying them and/or continuing seeing them. I would rather get information from a reputable book (again, as a young girl I rode my bike to the library where I would read reference books) and when the internet was invented I used that. I was always very curious!
I remember even yelling at some doctors because they gave me the run-around. One doctor at a famous hospital in Long Island (I remember waiting 3 months for that app't) refused to test me for lyme and ehrlichiosis and said if I had ehrlichia I would be dead. As sick as I was I called up his supervisor and told him what this doctor said to me. This was after I did my research and I knew I had lyme but needed medical proof.
I guess everyone responds differently. I was paying these doctors and I was not going to pay them to tell me bull. That experience alone of going from doctor to doctor was a real learning experience for me. I thought to myself "what did they learn in medical school?"
When I finally got by test results back from IgeneX I made copies and sent them to the majority of doctors I had seen over that 5 year period because of my anger. Looking back, it was good therapy for me to do that.
And I had no support from anyone. Not my family, not my ex-husband, no one. I drove myself to all those appt's when I could barely walk and I remember getting really lost going to many of these doctors. It was a very dark time in my life and again, I was very angry that none of these doctors could diagnose me. So finding a nurse who did the dark field microscopy where she discovered spirochetes and going to an ID doctor was a blessing for me. I know that ID doctors are the exception to the rule but that's how it worked out for me.
Totally healed for 8 years ~ used Dr. Jernigan's protocol from his book "Beating Lyme Disease"
Our bodies are wise as they can heal themselves with some help plus detoxing daily, eating healthy. I come back to help others for others helped me when I was sick. Pay it forward!