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New to Lyme Formum but not Lyme itself

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Lyme Disease
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Snue
Regular Member
Joined : Feb 2005
Posts : 195
Posted 6/20/2014 12:26 PM (GMT -7)
Hi Everyone, I am new to the Lyme section of Healing Well forums and just wanted to introduce myself.
I've been using Healing well forums for years and love the connection.

I found out recenlty that I have Lyme when my Igenex test came back positive. For the past 16 years i've been misdiagnosed with fibromyalgia and chronic fatigue syndrome!!!! 16 years of needless suffering if my original doctor didn't write me off when my regular western blot came back negative after a positive ELISA.

More recently I have been arguing with all my doctors who don't believe in chronic lyme disease. Even my "integrative doctor" who is non traditional!!!! Last week I finally saw a LLMD 4 hours from me that my friend got me in to see.

I started on a coctail of 3 antibiotics. I am also doing a lot of detoxing and getting the assistance of a biofeedback person who is very knowledgable about Lyme. So begins my journey.

Now I'll be switching from the fibro forum to the lyme forum.
Nice to meet you all, Susan
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Girlie
Forum Moderator
Joined : May 2014
Posts : 46777
Posted 6/20/2014 12:29 PM (GMT -7)
welcome, Susan!

16 years is a long time to be misdiagnosed...but the good news is - you now can start your healing!

What is UARS - you mentioned similar to Sleep Apnea?
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Roxie60
Veteran Member
Joined : Jun 2011
Posts : 1236
Posted 6/20/2014 12:34 PM (GMT -7)
Welcome. Similar experience here, ten years misdx or undx. Glad you finally have proof they cant deny.
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Snue
Regular Member
Joined : Feb 2005
Posts : 195
Posted 6/20/2014 12:42 PM (GMT -7)
Roxie, They do still deny it. My fibro doctor doesn't believe it's lyme because my igm's are positive but my igg's, although some positive, wasn't a "positive lyme test". He just said "well you've been exposed to lyme, but you don't have an active infection". Made me SO angry!!!! Seems the patients know more than most of the doctors!!! Thanks for the welcome.
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Garden Peace
Veteran Member
Joined : Sep 2012
Posts : 4191
Posted 6/20/2014 2:26 PM (GMT -7)
Welcome to the Lyme forum Susan! I'm sorry you've gotten the runaround like too many Lyme patients get. Hopefully you'll be helped by the doctors who accept that you have Lyme.
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