Hey everyone, thank you so much for all the responses.
Orchid, my llmd put me on samento and banderol for 2 months before starting doxy to breakdown the biofilms. These two herbal abx are known to kill this form better than most pharmaceuticals. I've been on them then whole time at max dose. Two months on doxy and then four months on clindamycin. I think he's going to try IV Rocephin next, because it's supposed to help with neuro issues. I got my teeth that had previously had root canals done removed, just incase some bacteria may be harboring in them and affecting my brain. No change.
Marie LS- For detox, I drink 60oz of lemon water a day and take something called Vitamineral Green and Vitamineral Earth. I also take Epsom salt baths (though not as much as I used to). I drink a TON of detoxifying tea, too. Not sure if this is enough. I had taken pinella and parsley for awhile, but they didn't seem to have an effect, so my doctor told me to stop. He says he doesn't like to waste time if it's not working.
MisterMike- I think we've talked about our eye issues before. I have burry vision, double vision, floaters, inability to track, hallucinations, constant static, frequent pain, no depth perception... the list goes on. It is my most noticeable symptom and it has been constant for at least 12 years. Can't seem to kick it.
I recently took a brain test that shows motor function, memory, cognitive function, etc. My doc said he's never seen scores so low before. It really bothered me. I feel like I used to be so smart. How the heck am I ever goig to get back into school? Am I going to get back to my normal someday, or will I just be here forever?
Tickbite- I have not taken an anti-parasitic, although I believe the samento and banderol cover that area. I will talk to my doctor about that this week and see what he says.
I put a call into his office this morning to see if I should go back on the abx. Thank you again for all you responses. It's helping quite a lot. Also knowing that I'm not the only one with this issues makes me feel like maybe this thing (or things) are really tough to beat, but not impossible. I often have my doubts that I'll actually ever get better. My doctor is so optimistic it makes me want to scream at him. He has no idea what it's like to leave his friendly office and go back to my couch where I tend to sit in pain and misery.
Sorry this message seems so depressing. I'm usually very optimistic, I'm just at might wits end with all this.