Posted 7/11/2014 9:33 PM (GMT -6)
Hi. This is my first time on here, so I'd like to give a quick background & see if anyone can relate or can give me any advice on meds they have taken. I've had pains for over 15 years. From my neck down to my ankles. I've fortunately been able to live an active life despite the pains. I've seen every type of doctor & have been to many PT's & chiropractors & kept hearing the same things, "you're too young to have all of these pains...i don't know why I'm unable to help you...you're an enigma...you should go see another type of doctor." Finally after tests coming up negative & doctors poo-pooing my pains, someone suggested a Lyme specialist whose office isn't too far from my house. Loooong story short, I was just got diagnosed with Lyme this past January...bartonella came up negative, but it's only 50% accurate. My 1st round of meds were bactrim, ceftin & clarithromycin. No relief after 6 weeks so doc put me on amoxicillin & minocycline. No relief again after 6 weeks, so now I'm on Zithromax & rifampin. I really don't think 6 weeks is long enough for someone who has had pain for so many years to feel relief. I'm not liking the jumping around of the meds, but putting trust in this doctor. A little nervous about rifampin since I have to get blood work every 2 weeks to make sure it's not messing up my liver. I'm interested to hear who has had relief of symptoms with which combo of meds. Also curious how long people give the meds to feel any effects from them. Feeling frustrated & wondering if I should get a second opinion, especially since this doc wants to do a pic line if this round of meds doesn't help, which I'm not interested in. Thanks in advance for any advice or suggestions.