New here and looking for seizure answers. First a tiny background why I think Lyme-8years ago accident in mountain community I live in, went over cliff, multipul injuries with bullseyes about
a week later showing up. Made many jokes about
bullseyes-if I only knew...
Have also photos of this summer ticks burried in my scalp-even have 3 deer ticks + 2 dog ticks in a jar. Horror stories about
new 'health care professionals' including police being called during seizure and police made 'diagnosis' of drug use-carted off in police car-all drug/alcohol tests negitive so now I'm simply delusional...
2 doctors now agree possible Lyme, 1 says 'so what? Everyone has fungus!' (3 years with MRSA and no toenails) 1 OBGYN even perscribed Flaygl, Doxy + Diflucan-felt SO GREAT-for 10 days. No dr. Willing to run tests, much less look at a photo. Managed to get new primairy and was told 'Lyme testing too expensive and you're paranoid schitzophrenic" , but got EEG anyway 'to prove once and for all' how delusional I am. Good thing I actually had seizurs for the eeg...
My seizurs are so strange-I have felt like I'm on a boat for about
2 years-it intensifies and my ears sound like a plane is roaring into them. My sense of smell either is gone completely or so intense I can smell the laundry detergent everyone around me uses. I rarely go completely out. I flush all over-my skin crawls (biofilm problems) my skin burns and I feel a disconnect from my body while thrashing about
-and one eye or the other feels like it's being ripped out. It's every 3 days the intense ones that is-most days I get all the above on a much lesser scale and apply yoga breathing and attempt refocusing on something that will fire up thinking about
anything but panic. Lately it's been quorum sensing.
That is part 1 of the seizure-next I can't speak, drool, slur, feel drunk (been years, so no, don't drink) my body goes limp, can't
open my eyes-but unfortunately I can hear. Usually it's 'oh get her out of my office' or 'I'm not buying the act Carol" There have been times I go out unexpectedly and a nurse even attempted to inform an ambulance driver I was completely out just under 4 minutes, but it's usually a seuzire due to blatent patronizing doctors that set me off.
This almost always sabatoges my chances-yep-i sure do understand that little glitch, so now I carry written notes I do starting about
5 days prior to appointments explaining I can write, hear and all questions should be answered in my notes.
The last stage of the sezuire is to me the most perplexing-I either 1) feel so much better I want to power walk, can speak, actually read and retain, and my double vision leaves for hours, leading me to believe that type was a Herx reaction and some toxin is lessening. Or 2) the exact oppisite-+ tongue swelling, lips swelling, white 'fuzz' above my neck, redish purple ears, knees swell, feet burn on soles, stagger, skin burns and turns translucent for moments before being covered in new biofilm of red and yellow patches leaving me bewilderd, feeling lost, loosing words, and everything I touch slides out of my hands-I'm actually slick! If I attemp to stand still, I can't speak and it starts all over-so I force myself to walk, not too far or I get lost, but to the end of the driveway and back 4-5 X is sufficient to end my shaking and vertigo.
My question is there any coinfections that have the added bonus of the boat feeling, I left out electric shock in elbows felling, leaving body feeling-I vaguely remember reading an article about
those manifestations, but can't remember where. The second option seuzire is almost ALWAYS upon returning home.
I should also note I have been diagnosed with black mold poisioning, 'some kind of protoazoa', 'some kind of fungus of hair, skin, nails', skin candida, thrush, MRSA in toes + ears, Hep C (self treated with zero viral load for years) , calcified granulomas in lungs, some kind of red cell take over-can't remember, Ehlers-Danlos, VonWilderbrands (bleeder and bleed through skin), inoperable 'floaters' and lastly-'nothing is wrong with you" by new infectious disease specialist.
I'm offered psyche drugs now and get dyflucan only 2X a month. I'm bald, broke, scary to look at, painfully thin, almost blind and in constant pain. I live in horrible unsanitairy conditions in a driveway in my falling apart RV towed here by my ex landlord-I have written every agency for help since 2 cats and 1 dog died recently-don't hate landlord, but he's a hoarding mess and getting better here seems a pipe dream.
I do take herbs and isk getting off topic now-so I'll take biofilm questions elsewhere and keep reasearching. I just don't agree with 'just live with it' thinking or that myself and over 34 other people that have actually looked at my photos are all delusional.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014