Posted 9/6/2014 6:44 PM (GMT -6)
I am dealing with my son - you can see some of my posts, he has neuro psychiatric brain lyme, raging, anger, not sure about brain fog, but seems unorganized, ocd, tics, but just took on a full 10th grade honors load with NO leniency. I have dealt with him like this for over a year - misdiagnosed all last year over and over despite my requests to physicians to look at his blood work (off the charts ) from 4 years ago (he was "cured).
It is VERY hard. It has shredded our family, my husband has little patience/tolerance so we are ready for divorce. His siblings "don't know what to do" - so he is on the compter gaming every waking minute in group chat/sessions/games.
He snaps when I walk in the dining room to bring him healthy food or meds. My life has been one nightmare after another for 14 years - THIS BY FAR is the hardest I have ever had and that is over losing two babies and both parents in 7 years (I'm and only child).
All I can say is try to maintain the patience of a saint. and then find more patience.... take walks, drink wine - lots - ok, maybe that part isn't going so well, trying to cut back, but it is SO HARD . You know you love him, it's the disease talking - that's what they tell me.
My son just turned 16 - I don't know if it will recur and ruin his life, I don't know if he has the brain power to get through this year (he was slated for top 10 in class - so smart, popular, actor, computer whiz... all questionable right now). This summer, I was wishing I had not had children, it is all just too hard. But for some reason, here we are and we have to be there for loved ones for some reason.
Four more years and without lyme, I may not be here for my husband anymore - this has been the last straw... he can have it all. Hopefully my son will be well and on his way and my youngest as well.
Please try to find support, at least stay on here, the people are just WONDERFUL - they have been getting me through these fires of h...