Hi Sf Charm!
Welcome to our community!!
Although you are far from being "new" to Lyme, I hope you take the time to go through our "New to Lyme? Start here!" thread. It's packed with important information, symptom lists, detoxing suggestions and more.
I would say it's more likely it's from a Lyme infection that hasn't been completely treated - you still have an active infection is why you are still experiencing symptoms- especially since ALS has been ruled out several times now.
Some of us take a lot to heal and there are so many thing to consider when we are trying to heal - the body has to be balanced out in regards to all the bodily functions in order to do battle with these bacteria - or we just don't heal, especially if the person has a long standing infection.
I would encourage you to find a LLMD and get back into treatments. There has been some remarkable improvements to treatments and protocol choices in the last couple of years that you could take advantage.
If you need to find a LLMD in your area, we can help with that. You can start a new thread (or change the title on this one) titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelop under my screen name. I may have contact information for some LLMD's in your area as well.
Please include your state and area that you would like to find a LLMD in and I will see how close I can get.
You can email Stephanie at: email@example.com
You can also go to: www.turnthecorner.org/
if you want to learn a little bit more about
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You can also now email TBDA (Tick Borne Disease Alliance) at firstname.lastname@example.org
and ask for LLMD referrals also.
You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.www.ilads.org/lyme/ILADS_Guidelines.pdf
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014