Anyone have weird neck and jaw stuff?

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IHL
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Date Joined Aug 2014
Total Posts : 2166
   Posted 11/11/2014 5:43 PM (GMT -6)   
It's like a process. First my jaw feels tight and locked up and then my neck does the same and then I feel super lightheaded and get blurry vision. What's the deal? It's frightening at times everything will start fade black but I usually never pass out. It lasts anywhere from 2 minutes to 2 hours.

Traveler
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Date Joined May 2007
Total Posts : 36314
   Posted 11/11/2014 5:47 PM (GMT -6)   
Try to pay attention to what leads up to it. Is it random or is there a trigger that happens up to 2 days before this?

Are you clenching or grinding your teeth?

Is there any extra stress just a bit before this happens? Does it happen every day?

I used to have real issues with clenching my teeth involuntarily. I didn't hardly know I was doing it, but that would always lead to my neck getting stiff.

These could also be completely unrelated to each other, other than through having Lyme. A stiff neck and tight jaw muscles are also Lyme symptoms.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

IHL
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Date Joined Aug 2014
Total Posts : 2166
   Posted 11/11/2014 6:08 PM (GMT -6)   
It happens a lot when I try to drive. I almost think it's connected to my vision somehow.. When I'm trying to focus or concentrate is when it gets bad.. and just randomly. I catch myself clenching my teeth alot. I've been good lately about trying to not let my teeth even touch but it's tight no matter what the majority of the time.

It's the lightheaded Ness that sucks about it. I get nauseous too..

Traveler
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Date Joined May 2007
Total Posts : 36314
   Posted 11/11/2014 6:16 PM (GMT -6)   
I actually used toothpicks to help stop myself from clenching my teeth. Each time I caught myself clenching my teeth, I put a toothpick in my mouth to at least cushion it a bit - and it helped me stop!

You can get Celestial Seasonings "Tension Tamer" tea to help you relax a bit - but you have to want to relax for it to help.

I think finding our triggers is the biggest thing we can do, and to avoid them when possible or find solutions.

Is it time to get your eyes checked? My eyeglass prescription changed while I was infected, and then got better when I was healed.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

IHL
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Date Joined Aug 2014
Total Posts : 2166
   Posted 11/11/2014 6:34 PM (GMT -6)   
I was just in and got new glasses like... 3 months ago. The glasses don't help because they don't make my pupils be the same size..

The neck jaw lightheaded stuff doesn't seem related to my teeth clenching. That makes my ears and jaw feel tired. Who knows I guess it could be just from clenching. But why is it making me feel like I'm passing out?!

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 11/11/2014 6:43 PM (GMT -6)   
I suffered TMJ from the age of 9. I think your symptoms are pretty common with TMJ. But the "why" is MAYBE the lyme & co. infection. My TMJ got really bad after I was bitten and infected with lyme. There are nerve relationships all throughout your head. I had many episodes of migraine or light-headedness and eye issues associated with increased jaw clenching or grinding. Also, there is a connection between your sight and middle ear and balance—but can't articulate it well.

I'm sorry you're going through this—it's miserable.

-p

IHL
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Date Joined Aug 2014
Total Posts : 2166
   Posted 11/11/2014 6:45 PM (GMT -6)   
Ugh.. it really is. Who would thinking clenching your teeth would be such an issue!

sueg
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Date Joined Aug 2013
Total Posts : 718
   Posted 11/11/2014 7:01 PM (GMT -6)   
It could be from a blood pressure problem or migraines.
I started getting a stiff neck and jaw when I first got my dx so
those could be from lyme or babesia.

Have you asked your LLMD about these things? And do you keep a record of it all, it really helps.

IHL
Veteran Member


Date Joined Aug 2014
Total Posts : 2166
   Posted 11/12/2014 12:06 AM (GMT -6)   
Ya hopefully he will elaborate a bit more at my next appointment

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36314
   Posted 11/12/2014 10:27 AM (GMT -6)   
My teeth clenching used to give me horrible headaches. It would start with my teeth clenching and move to jaw tightness/soreness -and if I couldn't get the teeth clenching to stop, it would progress to neck tightness, which could lead to all types of headaches, even a few migraines.

I would suggest that you try several things to see if any of them help ease any of this for you. You may not be able to do much about the different pupil size, but you might be able to get relief from some of the other symptoms.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 11/12/2014 10:39 AM (GMT -6)   
Traveler—
I could have typed your post myself. My entire upper torso was affected but mainly shoulders, neck and head. I would have trouble speaking, moving my jaw, eating and my eyes were affected like when I had a migraine. Many times I was even felt nausea.

Before the lyme, it helped me tremendously to meditate after I went to bed just before falling asleep. That doesn't work anymore because my brain is so disconnected. Heating pads used to help but not with the lyme...

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babesia, tested positive for Bartonella, CDC-positive for Borellia. Multiple viruses and GI/immune treated first; started AL-Complex in May; started A-Bart and A-Bab in July; have IV port installed and started on Rosephin.
Detox: Pinella, Burbur, Parsley, Milk thistle seed, Burdock root tinctures; japanese knotwee

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 210
   Posted 11/12/2014 10:51 AM (GMT -6)   
My teeth clenching happens at night when I sleep. I have a lot of neck pain, but not a stiff neck.
Started TDF vs. TAF Clinical Trial on 04/11/2014 for Hepatitis B
Screening Viral Load: 22,300,000 IU/mL
Baseline Viral Load: 18,400,000 IU/mL
Viral Load 24 Weeks into Treatment: 199 IU/mL

cairn1
Regular Member


Date Joined Jun 2007
Total Posts : 123
   Posted 11/12/2014 10:55 AM (GMT -6)   
IHL,Do you take someone with you to the llmd?I sure hope you do.That second pair of ears helps,write down all your concerns and give them to your doctor.
I was bitten on 5/14,started 21 days on doxy on 6/28.I have had all the symptoms of early,and now late stage Lyme,and now it's getting scary.I get much strength from all who post here

IHL
Veteran Member


Date Joined Aug 2014
Total Posts : 2166
   Posted 11/12/2014 12:03 PM (GMT -6)   
My fiance has been going with me. He doesn't seem to take my symptoms very seriously. I don't think he will believe it unless my test results come out positive.

He's watched under our skin and I've emailed him some stuff. I spend a lot of time feeling shut out by him. Maybe he doesn't mean to but it seems like he doesn't care very much. He expects a lot of productivity from me and I can't always keep up. No matter how hard I try I'm just not a normal person right now.. breaks my heart daily.

Anytime I try to talk to him about being sick he changes the subject. Sucks. I feel very alone in my household. I wish my mom could come back :(

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36314
   Posted 11/12/2014 12:12 PM (GMT -6)   
I'm so very sorry that you are going through this, IHL. I think many of us can relate. I have a very wonderful and supportive hubby, but while I was sick the first time, he spent a lot of time not being there for me when I felt like it was necessary. Come to find out, he didn't realize it was that bad for me (not sure why - he didn't think I was faking it either) and he had trouble dealing with the fact that I could be that sick.

The good thing is that we have each other here to help us through these tough times. Hang in there!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

lymebarthiker
Regular Member


Date Joined Oct 2014
Total Posts : 95
   Posted 11/12/2014 12:24 PM (GMT -6)   
A lot of us with Lyme feel shut out because for other people it is SO hard to understand that something so small can pack such a powerful and devestating blow to our lives.

I for one just finished hiking 2587 miles with my wife on the Appalachian trail. I used to be EXTREMEMLY active. I would climb 14000 foot peaks in Colorado on my off days from working manual labor at a golf course.

Now I work pizza delivery and even that exhausts me. I deal with the neck pain and the severe jaw pain. Most days I try to hide my illness as best I can and I would say that every person I work with has no idea I am sick. Also sometimes the people in my life that are very close to me see me trying so hard that even they fail to realize I am sick.

It is a very lonely existence to be sick and to look normal. Lyme is such a misunderstood disease and maybe once people start to realize just how intelligent and stealthy this disease is and also how devestating it is to people then lymies will finally get the compassion they deserve.

I feel for you and understand how difficult this is.
I thru hiked the Appalachian trail and believe I got a tick bite transmission of lyme, bartonella, and possibly babesia in June 2014

Symptoms started July 27, 2014

Treatment started July 29, 2014 doxycyline only

Saw LLMD Sept 07, 2014

Diagnosed with Lyme and bartonella clinically currently treating.

IHL
Veteran Member


Date Joined Aug 2014
Total Posts : 2166
   Posted 11/12/2014 12:43 PM (GMT -6)   
Thanks guys :)

I'm just feeling puny today. My fiance hasn't even looked at me. He's upset that I need so much rest. I will get up and kill myself in the process to make him happy. I just wonder if when I feel well how much resentment I'm stacking against him.

Our son is the one that ends up paying for his naivety. He is so involved in his work he can't see past it. He doesn't realize how hard it is to even get a glass of water sometimes.

Soooooo lonely.. I'm only 25 so socially I feel very behind. I haven't seen any of my friends in over 2 months. Everyone wants to pretend this isn't real or something. It's....ugh. it's just sad. This existence is soul shattering. Without my dog and my 2 year old I'd be sunk. And my cat lol gotta love that independent beast bringing dead birds in the house to me.

I guess I'm just feeling sorry for myself. And that's no good. Some days it's unavoidable. Pity party time I guess. Sympathy isn't my intention. I just want some good old fashion compassion. I need it.
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