Thank you for all the responses. Well, when my LLMD told me to stop abx at my last visit, she told me to hang in there until my next appointment.
Anyway I put myself back on abx, and also began Samento & Banderol. Samento & Banderol are what my LLMD asked me to take after stopping the abx anyway (but they didn't get here soon enough). It's been 2 days, the symptoms are still here, but less severe.
Katebirch & DazedPete1, hope you guys are getting better, and find a way out of this. This is, for me, more than frustrating; it's right down scary. I've pretty much been focusing on getting better and had thought I saw the light at the end of the tunnel...and now I'm not so sure.
My husband and I are discussing the possibility of getting PICC line for abx at Dr. J office in DC (our son goes there to treat his Lyme & co-infections). Anyone has experience with that? Please share. It will cost us a arm and a leg, but if it can get this thing down for good, we are willing to go through with it (as long as it's safe too).
Rowingmom, yes, I've heard lots of people were "weaned" off abx, which make me wonder if my problem is because mine was pulled off "cold turkey". Do you know how long your daughter will have to be on low dose of herb for?
Post Edited (RC2013) : 12/28/2014 11:41:02 AM (GMT-7)